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@empy The statistics note that 20% of the population have ES and only a few have symptoms. Doctors don't understand or don't want to. I recently saw a neurologist who said that it CANT be ES. I have had progressive and consistent symptoms for almost 10 months now, diagnosed 6 months ago. With neck pain that would not go away I kept pushing until I had an answer. The diagnosis was noted by the CT report. Once I had an answer it still took 6 months time for the head/neck surgeon to agree that I was a candidate for surgery. I am now waiting for a response from one of the docs in Philly for a second opinion on the best approach. My doc wants to do intraoral. It seems that the general consensus is externally. Ideally I hope to have the doc in Philly do the surgery, but getting my insurance to approve out of network may be a hurdle.
Replies to "@empy The statistics note that 20% of the population have ES and only a few have..."
Please let me know how the insurance handles the out of network care. I am waiting to see the only Head and Neck surgeon in MN that has treated ES, but it's a month out. Dr. Samji in California will do a phone consult for $500, but I am not sure how the rest of the out of network care/cost would be handled by the insurance co. Dr. Samji has done over 300 of these surgeries. The MN surgeon maybe has 1 every year or so.
I have been an extremely healthy 66-year-old woman who works out five days a week I have just been told I have eagle syndrome.. I was told this normally happens and people in the ages from 40 to 50 .. I live in Sacramento California and after hearing all these scary stories I need directions to the physician in Philadelphia please ...My symptoms began about a year ago and I just pretended it was nothing but after sharp pains going through my neck up to my ear I finally did process of elimination and it was the MRI that showed the Styloid Could be pressing on my carotid artery.
I humbly ask for the physicians name in Philadelphia please .
And may God bless each of you going through this I pray for you all 🙏🏽
Sincerely, Cristina from Sacramento Ca
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I am newly diagnosed by CT scan from an ER visit. Symptoms started a year ago , but constant for the past 6 weeks. After visits with family dr, dentist and oral surgeon they think it’s in my head. Well, turns out it is in my head, but in the form of bilateral elongated styloids and densely ossified styloid ligaments that extend all the way to the hyoid bone. The ER doc actually entered the room with his medical dictionary and said he has never seen this diagnosis before and suggested that I see an ent. After calling a few locations and being told that they will not see me, I have found 1 doc at the University of Minnesota that has treated this before. They are booked out a month, but am hopeful to see some relief in the future. Has anyone experienced trouble in getting surgery approved by insurance?