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Eagle Syndrome

Ear, Nose & Throat (ENT) | Last Active: Dec 6 8:32am | Replies (308)
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@empy

I wanted to add some comnents to everyone. You are not alone. The headaches, jaw pain and dizziness,so many can be caused by Eagles. I am new and not sure I can name doctors on this site, but there is a list and a discussion about doctors on another site. Much encouragement and blessings to you all. I have seen the other site mentioned here. It still saddens me after 6 years of research for myself to know that we are still running around seeing doctors that do not believe in Eagles or who tell us to live with it. They would not live with it. Skull base subspecialty in head and neck surgery often in universities or cancer centers are your best option for diagnosis and treatment. CT scan of neck with styloid measurement, and better with 3 D enhancement will give you answers. If you can get that you can get answers. There is a well known doctor in San Jose CA and several more around the country mo in the PA area and several others. Mine is in Baton Rouge,La. Indiana, KS. Maryland are just a few places. I think Atlanta, not sure. Hope I have helped someone today.

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Replies to "I wanted to add some comnents to everyone. You are not alone. The headaches, jaw pain..."
brooklyngirl | @brooklyngirl | Mar 20, 2019

@empy The statistics note that 20% of the population have ES and only a few have symptoms. Doctors don't understand or don't want to. I recently saw a neurologist who said that it CANT be ES. I have had progressive and consistent symptoms for almost 10 months now, diagnosed 6 months ago. With neck pain that would not go away I kept pushing until I had an answer. The diagnosis was noted by the CT report. Once I had an answer it still took 6 months time for the head/neck surgeon to agree that I was a candidate for surgery. I am now waiting for a response from one of the docs in Philly for a second opinion on the best approach. My doc wants to do intraoral. It seems that the general consensus is externally. Ideally I hope to have the doc in Philly do the surgery, but getting my insurance to approve out of network may be a hurdle.

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