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Replies to "So you knew of ES before getting symptoms. No one in my family ever mentioned any..."
Ear, Nose & Throat (ENT) | Last Active: 6 days ago | Replies (307)
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So you knew of ES before getting symptoms. No one in my family ever mentioned any of these symptoms and I had never heard of it until September 2018. Is your family having better success with doctors?
Replies to "So you knew of ES before getting symptoms. No one in my family ever mentioned any..."
I live in a different state than my mother and sister. They seem to have better luck there with doctors so I'm taking a trip up in April to see their neuro doctor since the doctors around where I am seem pretty clueless.
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No, I just recently found out about it from my mom. I think it's a fairly new diagnosis in the family. There's quite a few genetic issues that run in the family in general. I do know that my mom and my sisters styloids are not as long as mine and they are not as symptomatic as I am.