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Eagle Syndrome

Ear, Nose & Throat (ENT) | Last Active: 6 days ago | Replies (307)

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@de9g

I now have spasms also. Not lasting very long, but unexpected and definitely unwelcome. What does happen frequently is the twitching right eye, the pain on the right side of my neck/jaw/head and the weakness in my right arm and pinkie/ring finger.
Totally agree doctors are in way more into maintenance than operating on this condition. If maintenance could "pause" progression it wouldn't a bad idea, but symptoms keep ramping up and docs adding meds...
Anyone having dental issues due to extreme dry mouth?

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Replies to "I now have spasms also. Not lasting very long, but unexpected and definitely unwelcome. What does..."

HI De9g. I dont have dry mouth but sometimes severe tooth pain and sensitivity. Is your dry mouth all day or only in the morning? If only in the morning maybe you sleep with your mouth open. It would be good to get the mouth rinse for dry mouth to protect your teeth. I was at my dentist yesterday for some dental work now my third visit in three weeks. He did not know of ES but he researched it and knows that the it may be a part or or all of what is causing the pain. I may need a root canal but he said "lets wait" until the ES gets resolved (surgery). He understands!!!

@de9g
As for the facial spasms, mine are very severe. The twitching of the eye too! You need to see a neurologist which can order an EMG FACIAL NERVE CONDUCTION STUDY WITH A BLINK TEST. This will help to establish which nerves are responsible as it tests what exactly is causing the eye twitching and spasms. That's what they finally ordered for me. I have yet to go mine as my initial app. was cancelled due to inclement weather. This test will also hopefully give you the evidentiary proof and report you need to establish that you actually have Eagle Syndrome and nerve dysfunctionality at the styliohoid proces (where those nerves pass through), which we all know is most of the time the hardest and most frustrating step in getting help. If you can get a Dr. to accept that you have Eagle Syndrome then your halfway there.

I know that the spasms at least for me are very painful and more than the acute pain they are absolutely unbearably uncomfortable. It seems they get worse at least for me with any type of physical touch to the face especially the nerves at the rear base of the Jawbone. They're kind of on the bottom more towards the inside of the jaw bone. When those get touched my whole face goes crazy but then again even the slightest touch to my cheek will cause my facial spasms to increase tenfold in intensity.
Try to sleep laying flat on your back, looking straight up without putting any pressure on either side of your face. Hopefully at some point the nerves will either heal themselves or just altogether quell the spasming. Another thing that tremendously helps my facial spasms are muscle relaxers. And Prayer! Never underestimate the power of prayer. I don't want to use this platform to preach but I feel compelled by the Lord to say what's on my heart.....that hopefully you are saved and born again and therefore have full access to God and the power of Prayer, and if you're not then I will pray earnestly that you do get saved. It's only between you and the Lord Jesus Christ! Please don't confuse anything I'm saying about a relationship with God with religion. Because I will not preach to anybody about this Fallen religious world that we live in. That's not what I'm speaking about. I'm speaking about a personal relationship with GOD/CHRIST! Sometimes God allows us to go through these hardships in our lives because when everything is going great we have no need of him, We don't need to call on him for anything. Least of all salvation because we think we have everything we need. Sometimes God has to remind us that he's in charge and it's not to punish us but because he loves us and doesn't want any of us to miss out on eternity. We have free will, The payment for our salvation was already made for us but we have to choose and freely accept it.

Sorry if I offended you. Or anyone else with any of this but it is with the deepest love of my heart that Ive said these things. I will most definitely keep you in my prayers. @elimpert96
g+mail for personal. May. GOD bless you and heal you! I'm Always here to talk @ above mail and that goes for anyone else reading this and struggling with questions of faith etc.
Elimpert96