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Eagle Syndrome

Ear, Nose & Throat (ENT) | Last Active: 6 days ago | Replies (307)

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@elimpert96

@brooklyngirl
Yes i have had extreme spasms in the face, jaw and neck, which at certain times (even weeks long) seemed permanent without stop at all. The problem is the ENT doesnt associate the Spasms with Eagle Syndrome no matter what i tell them. They send you to the Neurosurgeon and Neurologists and they try to identify another cause for the spasms because they have no knowledge whatsoever on Eagle Syndrome. This leads both sides looking for different causes of the complications and inevitably dismissing Eagle Syndrome rather than addressing it or attempting to treat it! At least that has been my experience. I do believe the spasms are caused by nerve damage/interactions in the area around the Styliohoid process which in my case and maybe yours also results in muscle degeneration and thus muscle spasms. The whole timeline those things happen in is a mystery to me but your symptoms sound dead on with what i experienced midway through my problems. Muscle degeneration in the neck jaw and face could also explain the weakness in the neck. Anyways..... Im no doctor. Just dealing with the same issues and have been provided some answers (proffesional oppinnions) to different aspects of the complications. I will definitely pray for improvement and for the Lord Jesus Christ's healing hand to be with you. I hope my experiences/knowledge may hopefully help you even in the slightest. May GOD Bless You,
elimpert96

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Replies to "@brooklyngirl Yes i have had extreme spasms in the face, jaw and neck, which at certain..."

I now have spasms also. Not lasting very long, but unexpected and definitely unwelcome. What does happen frequently is the twitching right eye, the pain on the right side of my neck/jaw/head and the weakness in my right arm and pinkie/ring finger.
Totally agree doctors are in way more into maintenance than operating on this condition. If maintenance could "pause" progression it wouldn't a bad idea, but symptoms keep ramping up and docs adding meds...
Anyone having dental issues due to extreme dry mouth?

Hi Elimpert96, Thanks for responding and for your prayers. My muscle spams dont last long but the residual pain sure does! I have a call into a surgeon in Philly for a second opinion - Dr Congnetti is known for ES surgeries and has a small publication on it.