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I have posted several times here and I am so grateful for the support.
Last night walking home from the train I felt my neck muscles on the side towards the back spasm and tighten. All at once it become difficult to swallow and when I did the poking pain from the styloids felt like sharp nails - on both sides. The spasm felt like like it was pulling my head down into my shoulders. The spasms stopped but even today I can only best describe my neck pain as feeling like whiplash - very weak in neck and arms with knots painful to the touch.
Has anyone else had spasms? I am afraid to tell my ENT. Afraid to be send me off to yet another specialist. I'm home today from work using alternate heat and ice.
Also, I have often thought which came first - some sort of inflammation (like the initial cold I had back last June that started all of this). Inflamed neck that tightens the neck and then ES symptoms begin then never go away. Or is ES the initial cause of all of this? Thank you.
Replies to "I have posted several times here and I am so grateful for the support. Last night..."
I do not know which came first, but I sure wish there would be a new study on this and other causes of the ear/neck/headache issue. Thought I was inching forward and 3 doc visits this week show me I'm at step 1 again. More tests, more ruling things out while symptoms increase. Seems like 25 years of tests would have answered some questions by now. I heard there is an injection that would be fairly accurate on a yes or no answer for ES so why not give the shot and rule it out? Instead docs need another CT scan, another MRI to rule out Otosclerosis, ETD, atypical Meniere and probably hypochondria. Didn't log on because I thought I would have good news... wonk, wonk... Disappointing!
BTW, I had that spasm, but only one time so I didn't relate it to ES.
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@brooklyngirl
Yes i have had extreme spasms in the face, jaw and neck, which at certain times (even weeks long) seemed permanent without stop at all. The problem is the ENT doesnt associate the Spasms with Eagle Syndrome no matter what i tell them. They send you to the Neurosurgeon and Neurologists and they try to identify another cause for the spasms because they have no knowledge whatsoever on Eagle Syndrome. This leads both sides looking for different causes of the complications and inevitably dismissing Eagle Syndrome rather than addressing it or attempting to treat it! At least that has been my experience. I do believe the spasms are caused by nerve damage/interactions in the area around the Styliohoid process which in my case and maybe yours also results in muscle degeneration and thus muscle spasms. The whole timeline those things happen in is a mystery to me but your symptoms sound dead on with what i experienced midway through my problems. Muscle degeneration in the neck jaw and face could also explain the weakness in the neck. Anyways..... Im no doctor. Just dealing with the same issues and have been provided some answers (proffesional oppinnions) to different aspects of the complications. I will definitely pray for improvement and for the Lord Jesus Christ's healing hand to be with you. I hope my experiences/knowledge may hopefully help you even in the slightest. May GOD Bless You,
elimpert96