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Eagle Syndrome

Ear, Nose & Throat (ENT) | Last Active: 6 days ago | Replies (307)

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@brooklyngirl

Your story sounds like mine. All the best to you.

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Replies to "Your story sounds like mine. All the best to you."

@brooklyngirl.... I know that the list of doctors provided by @travelgirl is posted above. I was able to go through and find some near me, though I have not contacted them yet as I am waiting for the results of the neurosurgeons EMG conducted on my face.(even though they claim to know nothing about Eagle syndrome. Lol.). I'm sure still though that that information would be helpful to and if, I find somebody that will physically help me.

I would like to share with you the small amount of information that I know (so far as Internet research is concerned), in regards to the two types of surgeries offered for Eagle Syndrome, which still may indeed be far less information than many others on this site can provide you, though nonetheless may be helpful to you.

So from what I have read, the oral surgery first requires an initial tonsillectomy surgery beforehand and also vastly decreases visibility for the surgeon to operate safely during an already extremely dangerous procedure. It may be the less invasive of the two options but may not be the most accurate.
The other option from what I have read will leave a pretty rough scar (however if you're in the same boat as I am, a scar is pretty much welcomed if accompanied with a successful surgery), but the surgery must be performed through the side of the neck extending inward even further to reach the styliohoid(sp) process and is also very very dangerous considering the location of both the Carotid artery's proximity, and the shear amount of nerve impasses that pass-through the same point of operation. I do believe operation through the neck yields a great deal more visibility and as you stated probably a greater chance of removing the entirety of the problem. Probably a little more bloody and yes, will leave a scar but may be the better way to go....and for many years was the only way to go.

Also keep in mind that there are several different types of Eagle syndrome and each may require unique surgical techniques of their own (if to be successful) once surgery is underway.

From what I have read. Oral surgeries to correct Eagle syndrome are somewhat new and therefore if wished done correctly as I suppose with any Eagle syndrome operation must needs be done by an experienced Eagle S. surgeon. And that my darling seems to be the problem that we all have, finding an experienced surgeon willing to take the leap of faith to save and help the lives of those in need without the risk of failure and lawsuit plaguing him or her.
It's my opinion and maybe I'm just being a little bit ignorant, but I believe that all ENT/Neurosurgeons, at least experienced and leading ones in leading medical institutions, should be aware of all of the conditions surrounding their field (even rare ones). Sadly as we can all see from the messages in these forms, that's just not the case. I live in Baltimore, Md. and you would think that John's Hopkins University would be able to deal with an issue or at the very least be able to competently identify an issue that they claim to know about and yet don't have the slightest clue concerning it's true symptoms! Sorry to rant...It's just frustrating...

I will keep you in Prayer and I hope things improve.
Just in case you didn't see it here the List of Dr.'s mostly known to be experienced with this rare condition. This List comes with much thanks from me via @travelgirl. (Thank You Travelgirl)

Again I will prayer for
your healing and faith! May GOD Bless You @brooklyngirl and thank you for your thoughts and wishes for me.