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Eagle Syndrome

Ear, Nose & Throat (ENT) | Last Active: 6 days ago | Replies (307)

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@travelgirl

@elimpert96 welcome to connect. I am so sorry you are going through all the pain. My son goes through episodes where it really bothers him.
Have you ever had a CT Scan? If your throat is closing up like that, you really need to seek out a Dr that has done several of these surgeries.
It is serious surgery.
I attached in one of my prior posts another site that lists doctors who others have gone too. I know UF Health Shands hospital in Gainsville has a team Of Drs who work with Eagles Syndrome.
Here is the other site you can meet others like you.
https://www.livingwitheagle.org/t/4-10-15-updated-doctor-lists/774/41
Let know how this works out for you?
I wish you the best..
Jackie

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Replies to "@elimpert96 welcome to connect. I am so sorry you are going through all the pain. My..."

Thank you @travelgirl... Yes i have had tge ct confirming an elongated/overly calcified stylo process but dr's still don't want to address it and when they do they say they'll make it worse if they do operate. Can't get much worse than it is though. The past few months feel like years to me. I appreciate your response and am most grateful for the list! I have an emg nerve conduction on my face on tuesday @ the Neurosurgeons which im sure will show some results but my problem is the Neurosurgeons dont know anything about Eagle syndrome and the ENT surgeons don't want to entertain the idea of me having such a rare condition. We'll see what happens next week. Thank you again, I will look through the list!