Connect
Comment receiving replies
Hi,
I have been trying to just find an ENT who will take my case and look not at me like I’m nuts. I also have been struggling with ES. My Ct shows I have bi- lateral styloid that are extending to the hyoid bone. Both are fractured and one is said to closely approximate the oral mucosa.
I have ear-pain that feels like a bad earache, sharp pain that leads to the mouth when talking. I get frequent headaches, also pain in the neck area that’s is under the ear, pain where the jaw leads into the neck ( it’s under the chin about an 1 down). At times I get this popping sound in my neck that seems like something gets caught. The left side of the face slightly swells on and off. I periodically get a pain in the bottom of the neck like a sharp poke. An maxillofacial surgery is who diagnosed the problem and felt that I need surgery. So I went to one ent and he showed his true colors and told me he doesn’t believe in the existence of eagle syndrome. So he would have a bias prognosis and could not judge not case accurately. The 2nd ent stated that I needed to go see and spine and neck doctor and that my symptoms don’t constitute an es issue. He looked at me and said well Most people hear noise when They turn their head. He said but it could be a bulging disk. It has been a very disappointing and discouraging year. I am now looking for an ent at musc in Charleston. Does anyone have suggestions? There has to be someone who really takes people to heart and try’s to help because they care. Not the patient feeling like your the lier or the weird one.
Replies to "Hi, I have been trying to just find an ENT who will take my case and..."
Did you have any luck finding a doctor at MUSC Charleston?
I am in the same boat. One radiologist said I have a rare case of eagle syndrome as it is elongated and is calcifying from the middle/bottom on up rather than up to down. He sent me to this surgeon in U of M in hope to get me surgery but the doctor told me he wasn’t even that sure eagle syndrome was real and he tried say my symptoms were just to do with neuropathy but neuropathy is related to eagle syndrome. He sort of just pushed me away and said he couldn’t help as he didn’t think it was eagle syndrome even when one radiologist said they thought it was eagle syndrome. I’ve watched many eagle syndrome videos and they are going through what I go through. It made me realize I’m not crazy and that the pain is real. I’m looking for a surgeon who can help me. Wondering if anyone had and ideas
Connect
I also have the popping sound in my neck. I have an ENT who feels that it might be eagles syndrome but he keeps sending me to other specialist to rule out anything else. I have pain on/off for years but never consistent until 8 months ago. I had a minor cold with body aches that left me in bed for one day but the symptoms persisted. The side of my neck, and under my jaw feels like my glands are swollen and about to get the flu. My ear radiates pain, I have muscle spasms in my neck and now my tooth sensitivity is through the roof. Sometimes all symptoms are there at once, sometimes it varies and is erratic. A CT scan confirms the calcified elongated styloid process and the ENT was able to feel in from the inside. (I do not have tonsils). An MRI showed two bulging disk but the neurological surgeon said my symptoms do not relate to the disk issue. Some people say to hold off on surgery for a long as possible but at 57 the pain is a quality of life issue. I have another specialist to see on 1/31 then I loop back to my ENT to hopefully make a decision on what to do. Good luck to you.