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@davidmth,thanks for sharing your symptoms. Please see my detailed note above.
I have found it difficult to describe my symptoms to my local EENT specialist. I got a strange feeling that she did not believe me or made me feel as if I was a hypochondriac.
I am a healthcare provider myself and found her reaction very disheartening.
In retrospect, I can understand the rare nature of this condition and the lack of frequent exposure to the symptoms involved.
Replies to "@davidmth,thanks for sharing your symptoms. Please see my detailed note above. I have found it difficult..."
I feel the same way. I feel when I am describing my pain the doctors think I’m crazy or mental. They just never understand me, they try to push me away like it’s nothing. It’s like no one takes my pain seriously and it’s making me feel hopeless. I watched so many videos on eagle syndrome, and truly think I need a styloidectomy. The meds don’t work, my symptom flare ups are getting worse.
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I understand that feeling. It has occurred to me also doctors not believing me or thinking I’m strange. It can be very disheartening.