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Hello, I'm curious to know what symptoms you have experienced, it's a terrible affliction but i realize it could be much worse so i'm thankful but I feel like it's difficult to tell what's related to this syndrome and what isn't. I have a pain in the side of my neck when i turn my head too fast, it's like plucking a guitar string, but it's a nerve and it is both strange and painful. Sometimes I have weird feelings in my throat, dryness, the odd pain here or there, a feeling of a lump, it's all just so annoying. I'd appreciate if there are others that would share their symptoms to see if we share the same or different ones. thank you very much. David
Replies to "Hello, I'm curious to know what symptoms you have experienced, it's a terrible affliction but i..."
@davidmth,thanks for sharing your symptoms. Please see my detailed note above.
I have found it difficult to describe my symptoms to my local EENT specialist. I got a strange feeling that she did not believe me or made me feel as if I was a hypochondriac.
I am a healthcare provider myself and found her reaction very disheartening.
In retrospect, I can understand the rare nature of this condition and the lack of frequent exposure to the symptoms involved.
@davidmth Your symptoms sound similar to what my son experiences. My son complains a lot about the clicking and poking he feels in his throat. He also can feel the lump of the styloid.
Are you under care of a DR? You may need a Ct scan.
They watch my son's progression to make sure it isn't poking near an artery.
I am not sure about the dryness though. My son has not complained of that.
Wishing you the best.
Jackie
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Hello David. Welcome to Mayo Clinic Connect.
I'm sorry to hear that you suffer from the symptoms mentioned above. Have you been diagnosed with Eagle's syndrome? If so, was surgery mentioned as an option? @carolinedoubt mentioned above that surgery was an option for her. Caroline, did you opt to have the surgery?