Renal cell cancer: Anyone else with this cancer?
renal cell cancer came back in 2015 operated on again to remove, now in 2018 its it is located in lung and other parts. I have been God blessed to have the staff at Mayo to carry me thru this.
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I was diagnosed with kidney cancer, metasticized to bone (left acetabulum) in June, 2013. My left kidney was immediately removed and left acetabulum was treated with radiation. I was shortly thereafter put on sunutinib, 1 tab per day for 28 days, then 14 days off. After a few months, I began having severe reactions to the sunutinib, so my oncologist reduced my prescription to one tab every other day for 28 days, 14 days off. In March, 2018, I began experiencing sore throat symptoms and my oncologist prescribed an antibiotic after a month, my sore throat had not gone away, so he prescribed another antibiotic round. In June I underwent a c/t scan and my kidney cancer had spread to my right lung. My oncologist stopped sunutinib and went to Opdivo infusions. After two treatments, another c/t scan showed the cancer in my lung had spread to both lungs, so he advised me to stop the Opdivo and prescribed Cabozantinib. Due to my anticipation that Opdivo would be effective, I was not certain I agreed with this, so I got a second opinion from OHSU in Portland, OR. While there, the oncologist from who I was getting the second opinion noticed my throat issue and referred me to a throat specialist who took a sample to have analized. The "sore throat" was actually squamous cell carcinoma, HPV, making it easier to cure. The decision among the three oncologists was to continue my treatment with Opdivo and radiate the squamous cell in my throat, a somewhat grueling experience. I am, just now, beginning the radiation treatments.
Hi Wiggi, may I ask what type of Chemo are you getting ? I'm currently opted with Immunotherapy as my father's treatment. But is Chemo can be use as well to treat Renal Cell Cancer? Can I have email or something to contact you? I really need help. Thanks a lot.
I am happy that you have found others who might have some information to share with you. We are so fortunate when we are able to 'connect' with others who share similar health issues and can receive and share support. If you ever want to share personal contact information, please know that it is not allowed, for your privacy and protection, on this public portion of Connect You can use the private message feature (envelope icon-top of page) to safely do this.
Hugs.