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Mary D (@maryd)

Difficulty breathing on airplanes

Heart & Blood Health | Last Active: Jun 24, 2018 | Replies (10)

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@windwalker

@maryd I too have issues when I fly. I have always brought an oxygen concentrator with me. I know that I have trouble with altitude period, even in the mountains. I was recently tested for flying and cleared to go without oxygen. I am getting ready to fly in two weeks. I am a little apprehensive about flying without my oxygen.

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Replies to "@maryd I too have issues when I fly. I have always brought an oxygen concentrator with..."

@windwalker I think I would take an antianxiety med for one thing If they cleared you to fly but th know your own body just saying Good luck

Hello windwalker. Great that you have been cleared to fly without O2. Can you comment on the the following 2 questions? 1.)Can you tell me what test you had in order to determine the need for O2 on flights? I had a H.A.S.T. (high altitude simulation test) which showed that I do not need O2 on flights but yet I feel like someone is sitting on my chest when I fly and very short of breath. After the flight I am short of breath and weak for several days with chills. #2) I can not find the post I sent you regarding "Tobramycin changing your world". I am anxious to hear more about the history of your illness, symptoms, and the treatment with Tobramycin. I'm thinking this may finally be a case similar to mine. Thank you!

Hello windwalker. How are you doing? Did you feel ok on your flight without O2? I hope you are doing well. I'm sending my last post to you again. You may have replied on a different discussion page but I can not find it. Would you mind reading this post again and replying? I apologize if you have already done so. Here goes: Hello windwalker. Great that you have been cleared to fly without O2. Can you comment on the the following 2 questions? 1.)Can you tell me what test you had in order to determine the need for O2 on flights? I had a H.A.S.T. (high altitude simulation test) which showed that I do not need O2 on flights but yet I feel like someone is sitting on my chest when I fly and very short of breath. After the flight I am short of breath and weak for several days with chills. #2) I can not find the post I sent you regarding "Tobramycin changing your world". I am anxious to hear more about the history of your illness, symptoms, and the treatment with Tobramycin. I'm thinking this may finally be a case similar to mine. Thank you!

@maryd, Mary, about the tobramycin. I consider that to be my miracle drug. I have choked, hacked, coughed almost non-stop for many years prior to 2016. It was so annoying. I couldn't go to restaurants, movies, or theatre because of the constant coughing. I had pulled muscles and strained my bladder from violent coughing. I began treatment at the Mayo in 2013, the cough lessened over the next several years and was minimal by 2016. Then, the spring of that same year, The bad coughing was coming back along with greenish sputem. I tested positive for pseudomonas infection. Now, I was currently on Cipro and doxycycline on alternating months when I caught the pseudo. I was then put on a 30 day run of nebulized tobramycin. It made me very hoarse the first few weeks and it made my lungs feel a little wetter. By the end of the 30 days. My cough vanished completely. I was then put on alternating months of Cipro for ten days, and then back on the toby for 30 days. I am on the regimen to this day and have not coughed since 2016 except to intentionally cough after nebulized saline treatment to clean out the lungs. Tobramycin was my turning point where I finally felt like a normal human being after a ten year period of coughing and being so short of breath I could do very little. I am still short of breath, but not as severely as I was. My diagnosis is bronchiectasis, COPD w/severe blockage, mild pulmonary hypertention, Alpha-1 carrier (A-1 carriers tend to get serious lung diseases) history of mac & pseudomonas infection. Mary, please keep in mind that everyone different, what works for one, doesn't necessarily work for others. Does my case seem like yours?

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