Overmedication with cancer and other conditions
A lot of us with cancer are getting older and have comorbidities (new word I have acquired on this journey), so a danger is that we need a lot of medications to control not only pain but blood pressure, thyroid etc. We can be caught up in a tangle of medications all with their side-effects and possibly interactions. Do you have any tips about how to manage this?
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I think that the list is run through the computer at the Lymphoma Clinic I attend, and several providers review it with me also. It seems to be part of the charge for the visit, as far as I can tell. gp
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I too am an older (78) with comorbities. Love that word. Tamoxifen, levothoxine, several blood pressure drugs for afib, avastin shots for wet AMD and probably more that I have forgotten However I am lucky with side effects but always worry that all those drugs will not know what they should be doing together when I swallow a handful.
In over 4 years at Mayo, no one has ever reviewed my meds. There have been meds on my list that I no longer took. It is up to us to inform them!
@seaspray really? Whenever we go for a check-up for my husband the nurse goes over them with us and asks if there are any changes. We go to Mayo in Rochester.
I was on 16 medications and, besides feeling horrible, I also was mentally going downhill. I sat down and made an Excel spreadsheet, listed every drug, then tediously looked up interactions, reactions and allergies. It took,some looking and digging. It was so important to search every medication deeply, because there are interactions or reactions that occurred during trials and testing that were of such a low percentage that they weren’t listed on the basic medication leaflets, and some the pharmacist didn’t even know about.... I took him a copy and he spent a week going over it for me as well. That led to some changes in meds. Today I am on fewer prescriptions and feel better because of this little exercise. But any time a specialist tries to put me on something new, I know what questions to ask first, how to research side effects on my own, and have been able to be more involved in my healthcare.
@stephend
Hello Stephen and welcome to Connect!
I read your first post and found it so encouraging. Regarding your meds, you certainly did your due diligence!
I always appreciate it when I hear of others who are advocating for themselves. I have often done the same. Persistence does pay big dividends.
I hope that you continue to post and share how you are actively involved with your healthcare.
Since you posted in this discussion about cancer meds I hope that you can share with us a bit about your cancer journey in whatever way you feel comfortable doing so. For example, how long ago were you diagnosed? What treatments (surgeries, chemo, etc.) have you had? How are you feeling these days?
Teresa
@stephend,
Thank you so much for sharing how you did your own research and became a strong advocate for your own health. This is good advice for us all. Welcome to Connect!
I have done something similar but only for one drug - a statin that the doctor wanted me to take to "help" lower my cholesterol numbers. I had to tell her that when you have neuropathy, statins make it worse since one of the side effects is causing neuropathy. Since I have small fiber peripheral neuropathy, I told the doctor I will work on lowering the numbers through diet and exercise.
John
Hi @gaybinator, I was thinking about you today and realized you haven't posted in a bit. How are you doing?
Good for you, John. I admire your self-discipline. How is your cholesterol now, if you do not mind sharing.