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Shortness of breath.

Kidney & Bladder | Last Active: Sep 29, 2018 | Replies (30)

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@cehunt57

@ginal I have seen your posts about CKD, dialysis, transplant & getting listed, plus shortness of breath. I have stage IV CKD due to diabetes. I have been hoping for preemptive kidney transplant before dialysis becomes necessary. I have gone through pretransplant evaluation 2 years ago and was listed. Around that time I had a period of shortness of breath. I think it was due to the BP med dosage needing to be adjusted and to dehydration. I was limiting fluids thinking I should with CKD but learned that is not true until dialysis starts (in my situation). I just returned from my annual vacation at Mayo for pretransplant review. I’ve had an improvement in GFR and am too healthy for transplant at this time. My list status was changed to inactive. I got some changes in diabetic diagnosis and required medical regime that I’m trying to adjust to. I also need to loose 15 pounds, eat better, increase physical activity and exercise. My hope and prayer for you is that you can loose the weight you need to and get listed. It will be worth it. You should also look for a living donor. That is better. You have already dealt with dialysis, something that really concerns me and is something I haven’t had to deal with yet. You can do this too (weight loss). Stay positive.

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Replies to "@ginal I have seen your posts about CKD, dialysis, transplant & getting listed, plus shortness of..."

@cehunt57, Hi yes I believe my shortness of breath was due to BP meds and dehydration. Even being on dialysis I have to watch not to get dehydrated. I wish I had a living doner but can't find anyone. Loosing this 15 pounds have been so hard I have gained a couple but need to really get my butt in gear. I am on home dialisys which is working for me much better then hemo. I wish the best for you too, keep in touch, Gina