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Bronchiectasis with MAI (for the second time)

MAC & Bronchiectasis | Last Active: Apr 19, 2018 | Replies (20)

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@windwalker

@jenblalock and @mary0310 Please keep in mind that my treatment plan was for A. Mycobacterium (mac) What you two have/had is a. Mycobacterium intracellulare (mai). That is a different strain of mac and requires stronger treatment. It is a tougher strain to treat as it is resistant to most antibiotics. I was up until 2 a.m. last night reading about it so that I do not pass on faulty information. Jen, it is fantastic that you provided a success story of after treatment. That offers a tremendous beacon of hope for others that are in treatment now.

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Replies to "@jenblalock and @mary0310 Please keep in mind that my treatment plan was for A. Mycobacterium (mac)..."

@windwalker Thanks, Terri. I am grateful and feel very lucky. I'm fighting an exacerbation currently from a virus I picked up that turned into HIB but the antibiotic killed the bacteria so now just in recovery mode. I guess I didn't realize that MAI was tougher to treat. Anyway, the meds were worth it for me and I'm glad I didn't have weigh serious side effects against treatment.

Can you share more of what you learned?

@jenblalock , Jen, I am glad that you are on the mend. What the heck is HIB?

@windwalker Hi Terri, it's haemophilus-influenzae. It's not really flu but called that for some reason. It's contagious and can infect children (although there's a vaccine now) or adults who have a chronic lung disorder. I'm not sure if it's bacterial or viral. I know it can cause bacterial pneumonia (which I did not get luckily) among other problems. I seem to be recovering from it with only a cough and fatigue left. Annoying how long it takes though!

Hemaphilus Influenza B

@jenblalock Bummer that you got it. Seems it takes more time to recover from most of the things we catch. Glad you are the mend now. -Hugs!