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Bronchiectasis with MAI (for the second time)

MAC & Bronchiectasis | Last Active: Apr 19, 2018 | Replies (20)
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@jenblalock

@mary0310 I had MAC with Intraceullular (only once so far - knock on wood) plus cavitary lesions so was treated right away with the Big 3 and Amikacin. Do you have any complicating factors such as cavitation? I have to say, in my case, the Big 3 worked and I was off meds within 15 months with no side effect damage. It is interesting that there are actually other treatments available such as what @windwalker is doing.

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Replies to "@mary0310 I had MAC with Intraceullular (only once so far - knock on wood) plus cavitary..."
Terri Martin, Volunteer Mentor | @windwalker | Apr 19, 2018

@jkiemen Hi Jo Ann, it has been long known for years by NIH that NO therapy works; it was a matter of cost in the delivery that made it prohibitive to use. Do you know if there has been any change in that aspect?

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Jo Ann K | @jkiemen | Apr 19, 2018

No but I am waiting for the clinical trials to keep expanding. I think the thought process is that the delivery system may be part of the research. But if it is cost keeping us all from being well, the cost of keeping us ill should be compared and it would probably be a wash.

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Terri Martin, Volunteer Mentor | @windwalker | Apr 19, 2018

@jkiemen good point.

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