Connect
← Return to Bronchiectasis with MAI (for the second time)
Discussion
Bronchiectasis with MAI (for the second time)
MAC & Bronchiectasis | Last Active: Apr 19, 2018 | Replies (20)Comment receiving replies
I have MAC and bronchiectasis.The only antibiotic that had effect for me was azithromyicin. I also lost some hearing and got off it after six months... this was the past year...up until then I took no meds.. My primary problem has been fatigue. I started using a nebulizer two weeks ago using a saline solution my doctor prescribed. I use it morning and evening and it's the best I have felt in a long time. I'm functioning again. My nebulizer is easy to use. It's a small, hand held ultra sonic I purchased it on Amazon for about $25. I just bought a second one as a back up. I was diagnosed in 2010. I am able to get in bed at night with no coughing. I am on oxygen at night as of a year ago. But, not during the day. I just couldn't stand to be tethered all day.
Replies to "I have MAC and bronchiectasis.The only antibiotic that had effect for me was azithromyicin. I also..."
Connect
I was diagnosed in 2012. I am also doing the chest clearance 2x a day alternating Acapella and Lung Flute. i tried 3%, 7%, 9% and even 10%. I stay with the 7%. I do the chest clearance regularly even i do not feel any improvement from it because I thought I. Ight be worse if I do not do it. Even with the regular nebulization, I could not cough up phelgm. The only way for me to be tested is via Bronchoscopy. My fatigue goes and off, but not enough to bother me. It is the shortness of breath that gives me so much discomfort. My oxygen saturation is between 93-99 (very rarely at 93 and 99 but normally at 97%). I am on Spiriva and ProAir too...but i stopped the ProAir 2 days ago, though because it gives me throat irritation even with diligent gargling).