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jodeej (@jodeej)

Lactulose question

Transplants | Last Active: Jul 1, 2018 | Replies (47)

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@jodeej

Well, we talked to the doctor and Tim's ammonia levels are actually in the normal range. That means his "brain fog" isn't from that. I know this has been on my radar for a few years now and I'm beginning to think that it was caused by the antivirals he took to get rid of his hep c. Does anyone know anything about this or where to get more information?
Thank you,
JoDee

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Replies to "Well, we talked to the doctor and Tim's ammonia levels are actually in the normal range...."

@jodeej JoDee, when I was having HE my PCP wanted to do regular tests to check my ammonia level but the hepatologist said it is not a reliable indicator of whether or not a person will have an HE episode or not, that some people whose ammonia levels are high seem to be able to function fairly normally and some people whose level is not high do have symptoms, possibly like the brain fog you mention. Frankly, in my case, I think it would have been an indicator but it can change so rapidly that getting it tested it weekly is not really a reliable indicator if you may or not have an episode. Your ammonia level could be fine one day but two days later go high.
JK

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