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Darzalex Treatment
I am entering the eight biweekly treatments of Darzalex, and would like to hear from others who have had this treatment. It is successful in treating my myeloma thus far, but I am interested in hearing if anyone has seen a difference in side effects as the treatments go from weekly to biweekly to monthly.
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I was diagnosed in April 2016. I had been losing weight and anemic but my GP never sent me to cancer specialist, just kept trying to find out himself what was wrong. In retrospect I wish I would have googled symptoms and lab results myself. but hindsight is always right. I ended up in the hospital with cardiac tamponade and was diagnosed almost immediately after that. Started revlimid and velcade with prednisone. After 4.5 cycles was ready for a stem cell transplant (I was still 62 at at that time). During my workup at Mayo Clinic it was found I also had amyloidosis which is not good. Still passed everything and had transplant Aug.19. It went pretty good considering. Seemed to be a success and I stated feeling much better. Started maintenance revlimid in Dec. We are dairymen and went back to work on farm and did bloodwork every month. The lambda numbers and protein spike started going up 2 years post sct. Had my checkup at Mayo last week and my doctor wants to start Daralex with velcade and prednisone and discontinue the revlimid. I am home again and waiting to hear from my doctor here in Sioux Falls (I'm from SW.MN - 3 hrs from Rochester). I still feel really good and my cramps from taking the revlimid are gone.I was just wondering what my new symptoms were going to be. I did have a hip replaced last March which is doing good and a shoulder injection last week while at Mayo. Bone Marrow biopsy showed the amyloidosis is back too. I noticed you take Claritin and was wondering why that would help for bone pain. I had awful bone pain when starting chemo the first time and had to be given morphine to get it under control..Hate to have that happen again. Thanks so much for your time! Frieda
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1 ReactionHi again. When you think you want to talk about my personal Darzalex side effects, feel free to call me, personal message me for phone number. Any time after tomorrow. We aere in PA, make minimum of yearly trips to MN Mayo, 1,100 miles each way. We call it a vacation. :0)
Nancy
That's funny cuz I have a handicapped daughter who had a kidney transplant in 2004 so we also have made many yearly treks to Mayo ( I know not near as far) but Diana just loves the trips. Also our vacation! Last week we went to the pound and the Spam Museum in Austin plus our shopping trips to Goodwill and Savers
Funny for sure. And enjoy a Goodwill anywhere, that one included. Ever go our route I can hook you up with a great BBQ restaurant and best cheese stop in Wisconsin. :0) Talk soon.
Nancy