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Darzalex Treatment

Blood Cancers & Disorders | Last Active: Jan 21, 2019 | Replies (14)

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@JustinMcClanahan

@1nan, thank you for starting a conversation on its own about Darzalex (Daratumumab). I am inviting @beckyoutlaw1115 to this conversation as you briefly discussed this treatment a few months back. @1nan, while I continue my search for more members discussing your particular treatment, would you mind sharing how your initial treatments have gone? How are you feeling so far?

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Replies to "@1nan, thank you for starting a conversation on its own about Darzalex (Daratumumab). I am inviting..."

Thank you, Justin. The first treatment was divided for two six hour infusions. There was no serious reaction, but I had side effects that included extreme muscle, joint and bone pain. With doctor permission, I took daily Claritin and it reduced that pain problem by about 90%. Other side effects have been loss of appetite, feelinh "ill", and significant physical fatigue. There seems to be little rhyme or reason to a pattern, but mental energy is consistently good. So to give positive meaning to the eight weeks, I completed printing three books for my family instead of pitching them to publishers! (Always a long process.) To give positive meaning to the eight biweekly treatments, I am writing part B of the second children's book. This treatment is not a walk in the park, but allows for meaningful living, and reconnected me with old friends fron my writers group! And it is successful in lowering my kappa free light chain. I am hoping others may report they have found more energy as time goes on.