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JAK2 Mutation - Effects and Questions

Blood Cancers & Disorders | Last Active: Jun 19 5:59am | Replies (303)
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@godschild56

I have just been diagnosed, ET with JAK2 mutation....he wants me to start on Hydrea...it is reassuring that you are not having major side effect issues with it....I already have several symptoms of the disease and can't figure out why i would be taking a medicine that will not help get rid of the symptoms, but could increase them??? very confusing.....

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Replies to "I have just been diagnosed, ET with JAK2 mutation....he wants me to start on Hydrea...it is..."
barbie75 | @barbie75 | Mar 4, 2020

Hello, was diagnosed with PV due to very high platelet count that led to 2 mild strokes. Am very healthy person overall and surprised that I had 2 mild strokes which lead to PV diagnosis. My main issues were extreme fatigue and an itchy back. Am now doing fine taking1 hydreau pill day and platelets in normal range. Did anyone else have a stroke as a result of undiagnosed high platelet count?

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lefsequeen | @lefsequeen | Feb 4, 2021

I have JAK2+ ET and I've never had side effects from Hydrea in the 30 years I've taken it. It has only improved my health, so don't assume it will make you feel worse. For me, it only made me feel better!

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