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JAK2 Mutation - Effects and Questions

Blood Cancers & Disorders | Last Active: Jun 19 5:59am | Replies (303)

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@esperanzam

A P.S. I quess: and I know there is probably no good/clear answer but one cannot help but wonder what effects on the body, (bones) etc the HYDREA has. I know that without it I would probably have worse consequences but I guess we will all have to wait and see what the long term effects of this chemo has on who and how many. That is one thing I think is beneficial about sharing on a place like this with many others who are experiencing same and possibly different things.

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Replies to "A P.S. I quess: and I know there is probably no good/clear answer but one cannot..."

I have been on HU for nearly 28 years. I have had some issues, but nothing really that wouldn't come along with aging anyway. I started HU when I was 39 and still take 500 mg/day plus an 81 mg aspirin. It's kept me going!