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JAK2 Mutation - Effects and Questions

Blood Cancers & Disorders | Last Active: Jun 19 5:59am | Replies (303)

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@ajordan1982

I have a question and this might already have been discussed but has anyone ever had back spasms/ left side back pain, left shoulder pain and or neck pain?? I Have MS in my Brain and had pushed it off to but now i am questioning if the Jak 2 is causing it. Any suggestions or thoughts? TIA

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Replies to "I have a question and this might already have been discussed but has anyone ever had..."

The other thing i am wondering is at what age where you diagnosed and what the treatments have been?? My doctor wants to take pints of blood monthly from me (which hurts and leaves my veins hurting) because medication is not an option as would have to be on it for the rest of my life. What is everyone else doing??

I am JAK-2 positive and I have not experienced back spasms, left side pains, left shoulder pain or neck pain.

I do have those symptoms, ET. Not sure if its because of some medication im taking for my thyroid or if its tension. Hopefully will know soon since ill stop medication for few days and observe