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JAK2 Mutation - Effects and Questions
Blood Cancers & Disorders | Last Active: 2 hours ago | Replies (336)Comment receiving replies
@carlavan, welcome to Connect. I moved your discussion to the Blood Cancers & Disorders group and combined it with a discussion where other members are talking about JAK2 mutations and essential thrombocytosis. While we wait for other members to jump in, would you mind sharing a bit more about yourself? Have you talked with your hematologist or medical provider about the possible connection between your ear infection and essential thrombocytosis?
Replies to "@carlavan, welcome to Connect. I moved your discussion to the Blood Cancers & Disorders group and..."
@JustinMcClanahan hi I too have been recently diagnosed with PV and JAK2 mutation I’ve been on hydrea 500 for the last 4 weeks and and am suffering from neuropathy especially at night which is keeping me awake also awful fatigue and I have a couple of questions I hope can be answered firstly I have bad around my back and was taking Vimovo and no not sure what painkillers if any I can take now? Also with Christmas coming up and all the festivities is it ok to have a glass of wine as it says on the info with hydrea not to drink alcohol also if any has neuropathy what have they found helps as I’m new to this I’d be grateful for any helpful suggestions to manage symptoms
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Thank you. Just diagnosed 2 weeks ago but my ENT has trie to get rid of the ear infection to no avail. Wondering if it could be related. My hematologist told me to google leukemia & lymphoma society for more info