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Zero appetite, not getting adequate nutrition
Autoimmune Diseases | Last Active: Mar 31, 2018 | Replies (13)Comment receiving replies
Hello @grokking -- Have you thought about getting a second opinion from another doctor? I found a Mayo Clinic page that seems to describe what may be going on. It describes inflammatory bowel disease:
I'm not sure if it's a possibility for you but Mayo Clinic is very good at diagnosing hard to diagnose diseases and health problems. If you would like to seek help from Mayo Clinic, please call one of our appointment offices. The contact information for Minnesota, Arizona and Florida
can be found here:
I'm tagging other members who are more familiar with digestive health problem and may be able to offer some suggestions. @kanaazpereira, @dawn_giacabazi, @kdubois, @kariulrich, @vdouglas do you have any suggestions for @grokking?
John
Replies to "Hello @grokking -- Have you thought about getting a second opinion from another doctor? I found..."
Your problem with eating is not a good sign. I have crohns disease and the pain associated with it is painful. Your tests with imaging machines like PET have a few problems... they are good for detail on a certain level but struggle on multiple axis like 3 Dimension and growth areas. Try my facebook page ...
/martin.graham.5711
for tips and advice involving these issues.
Good luck
Martin Graham
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Thanks, John. I've had hundreds of labs, nerve conduction studies/EMGs repeatedly, and nerve biopsy, PET, MRIs, CAT scans, and the polyneuropathy types are well documented (well, at least the sensorimotor part).. This is definitely not bowel related (other than my microbiome), rather, more upper gut, nausea, pain, etc. It is pretty classic for autonomic stuff. But I can't eat and it's destroying me. I am poor now, can't afford travel or more doctors. Just hoping one person might have a solution. You are so kind to respond.