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@rosemarya @contentandwell @gayle1 @kltchrmn I am almost certain my husband had a HE episode last week. He was crabby, tired and said he'd had "fog" all day. The reason I'm somewhat uncertain is that his dad had passed away a couple weeks earlier and he realized that Father's Day was coming up. So it could possible be grief and depression causing it. After looking at the symptoms though, I know he has been having signs of HE for quite awhile. We leave for Rochester tomorrow morning, so we will see what the doctor says. His score is a 30 right now.
Blessings,
JoDee
Replies to "@rosemarya @contentandwell @gayle1 @kltchrmn I am almost certain my husband had a HE episode last week...."
@kltchrmn he isn't on anything at the moment. I'll be interested to see if that changes after these appointments.
@kitchrmn sorry for my ignorance but what does HE stand for? I take rifaximin and lactulose and have never heard this term.
@jodee I suffer from this haze and bad temperament most days. It's been a year on the list my score is 37. What exactly is HE?
Hepatic encephalopathy - an over accumulation of amonia in the bloodstream and brain. Causes fogginess or short term amnesia and difficulties with balance (gait) and fine motor issues, and mood changes.
Hepatic encephalopathy- problems with gross and fine motor function, mood, and fogginess of the mind.
@gaylea1 I can't believe that you haven't head a transplant at a 37! It's Hepatic encephalopathy. When I look back I can see my husband has had some mild episodes. I'm sure they will get worse before he transplants. It doesn't help that he is a bit on the moody side to begin with, I'm sure. 😉
Thank you. I don't have a build up of ammonia now due to drinking lots of water, diet and meds.
@jodeej I hope all goes well in Rochester. With xifaxan, and then with added lactulose eventually, my symptoms were kept at bay. Hopefully he will be using one or both of these and do well with them. As his liver gets worse of course the symptoms increase.
Will be thinking of you.
JK
@gaylea1 Along with the other symptoms of HE mentioned, there are four stages of HE. When it is really bad and not attended to, it can lead to coma For me, the main thing was total confusion. I landed in the hospital 3 or 4 times, due to the confusion. My husband could not handle me at all and actually called an ambulance a couple of times. I hate to admit it, but I did also get somewhat aggressive and belligerent. When I think of those episodes it brings tears to my eyes. I was a totally different person. Oddly, in between episodes I was perfectly and led a totally normal life. Some people are in a fog most of the time.
JK
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Is he taking Xifaxan, too? I’ve had one episode of HE that required hospitalization it came on so quickly. Apparently I was very crabby and angry. I do notice signs of HE almost daily, but my meds are keeping me on track. Fog, like fog, comes and goes.