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Polycythemia Vera and Nutritional Ketosis
Blood Cancers & Disorders | Last Active: Jul 22 5:35pm | Replies (54)Comment receiving replies
I definitely consulted with my oncologist before embarking on this plan. She felt that it would have a strong positive impact on my general overall health that it was worth trying provided that I agree to regular monitoring of my blood throughout the process.
I certainly don't let it define who I am, rather it's just something that I have. There are many worse things by which one could be afflicted, for sure!
The first phlebotomy was rough, multiple techs poking multiple needles in both of my arms and they just couldn't get any blood to flow. I had to come back in a few days later and had to have it suctioned out with syringes. After that though they were much better.
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I have polycythemia Vera..Cancer is not new to me, I had breast cancer in 2009 with chemo and radiation, Just passed 15 years with no recurrence. I had bowel cancer in 2012 it has familial roots, was watching for it and got it before it left the bowel and only surgery was needed. Now PV, I had phlebotomies in the early days with hydroxurea then finally I'm controlled with hydroxurea. In the early days I had a terrible attitude, anger and maybe some depression..Finally I decided I'm my worst enemy, need to change my attitude after all, as stated earlier, there's far worse diagnosis's that people are dealing with and I'm reminded of that every time I walk into MDAnderson for appointments. I changed my attitude and I'm starting to feel like my old self again. I'm retired, joined the Nurses Honor Guard yesterday, eating well and living with a purpose instead of living the sick role, it's has changed my life.
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The phlebotomy does sound rough. I was born with a genetic bleeding disorder called Hemophilia. As a result, I have to give myself injections of clotting factor in my veins three times a week, so I am familiar with needles, veins, and the difficulties that can come with it!
I'd like to invite some members from a conversation that took place some time ago, @bg207, @rgreen1, and @sdahl.
@chadknudson, it is also great to hear that your oncologist is in the loop and on board with your diet change, I'm curious to see what she says about the results you are experiencing!