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Who else has Autonomic Neuropathy?
Neuropathy | Last Active: Jun 10 2:46pm | Replies (121)Comment receiving replies
Hello @jobeo1,
I moved your discussion to combine it with this existing discussion on autoimmune neuropathy as I thought it would be beneficial for you to be introduced to the many members who have discussed this condition.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.
Since autonomic neuropathy is also called autonomic dysfunction or dysautonomia, I’d like to introduce you to a few members who’ve discussed these conditions and may be able to share their experiences with you. Please meet @hayliesmom @emelisseb @bearylynn @neeci @mojoearle @widman @sydneysmom @cehunt57 and @tuckerdoodle.
Some of these discussions might interest you as well:
Autonomic Dysfunction https://connect.mayoclinic.org/discussion/autonomic-dysfunction/
Living with Neuropathy - Welcome to the group https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/
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I am a 54 year old terrified female. I have autonomic neuropathy. I am ashamed to say that I believe mine was caused from alcohol, but the five neurologists I have seen says I did not drink enough to cause this. I am not diabetic. I have had a number of traumas. The conditioned has worsened in the two years since I stopped drinking. I am almost bald. I have headaches, vision problems, trouble swallowing, GI and urinary problems, numbness, burning, and unbearable fatigue. I need to desperately to hear from someone who is living with this. None of the doctors have offered any treatments. They say I can live but I will wish that I would die. (Really, that's what a doctor told me.) I am losing hope, and I think of suicide often because I'm afraid I can't keep working and taking care of myself. If I just knew of anyone who lived with this condition long term, I think I could be more hopeful.