@jerrydrennan,
Unfortunately, I learned how to spell cholangiocarcinoma 9 years ago. I was listed at another transplant center (University of Kentucky Med Center) with Primary Sclerosing Cholangitis. When they suspected cholangiocarcinoma they scheduled an ERCP to collect tissue samples. But they were unsuccessful, and I had to be inactivated from the list. The head transplant Doc made arrangements for me to go to Mayo Clinic. He said it is the world leader in cholangiocarcinoma research and treatment. In my case, I did not have it, and was relisted at Mayo where I received my transplant.

I can relate to your "steering blind" comment. Keep in mind that you will be in the very best place and in capable hands.
I am here to talk with you. I joined Mayo Connect because I was looking for someone who shared my experiences. So I can honestly say that I know what you mean.
Are you already listed for a liver transplant? And are you listed at Mayo or somewhere else? Which Mayo location?
Rosemary

I am listed at Mayo clinic in Rochester Minnesota
I have a meld score of 29
I know I am at the right place. I am from Kosciusko TX. I was sent to CTRC in San Antonio tx. We thought was the top cancer therapy research center next to MD Anderson on Houston.
They sent me to the Mayo. I have talked to some liver Transplant patients . They all have a different reasons than mine. I have found odd. I did find one person in the year I have been involved with the Mayo. David had a similar cancer but had other issues the attributed to the cancer and transplant. I checked that site it did not reflect staging. Just praying for activation after staging. Thank you for responding, I see how this will be helpful. I really did not expect a response.

@jerrydrennan I hope all goes well on May 14. I had a liver transplant due to non-alcoholic cirrhosis. I did have some malignant lesions in my liver also but they were burned off by an ablation.
If they have you set up for "staging" (I'm not sure exactly what that means or entails) then it sounds like you are already heading in the best direction.
JK