Barrett’s esophagus

Posted by jvanstratten @jvanstratten, Mar 22, 2018

Looking for info and help with Barret’s esophagus. I can’t figure out just how serious this is. I have read way too much online! I don’t really know how strict my diet really has to be. It is really stressful-. Does anyone here have it? And exactly how serious is it?

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Back burner. Thank you for asking. Instead of 3 done during 2020, zero ablations in 2020. Hopefully we’ll get back to THE BEFORE TIMES someday soon.

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Yes I did. I'm going to ask him how does a person get rid of chronic gastritis or do I just live with it? I'm staying on my strict diet for life. I've read that gastritis can turn into stomach cancer.

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@valm

I was diagnosed with Barretts about 13 years ago. I’ve since had a Nissen Fundoplication done since my “esophogial flap” wasn’t closing and food was even coming back up after eating. Since the surgery, I can’t throw up though, so I have Ondensatron on hand if I get nauseated. Barretts is pretty serious stuff and can really cause a lot of damage. I still get scoped every 3 yrs. to ensure it’s not progressing further.

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I had Nissen Fundoplication 4 yrs ago and it really eliminated my GERD and esophagus erosion. Now, seems like GERD is coming back a little. Have read that over time, the wrapping of upper stomach near flap may loosen and some reflux may reoccur. Have you encountered that at all? Thanks

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I was diagnosed with Barret's back in 1987. every year since I have had endoscopes and biopsies taken and it has remained stable.

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@aunt

I was diagnosed with Barret's back in 1987. every year since I have had endoscopes and biopsies taken and it has remained stable.

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Are you on medication for it? How strictly do you follow a low acid diet? Never having coffee is a killer for me!

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I have learned over the years that acidic food is just not worth it for me. for a while I could handle Taster's Choice instant coffee but haven't had that in many years. In place of the coffee, I take a couple of "Jet Alert" every morning they are OTC caffeine pills sold at wallmart. I have been on almost everything since the 80's and usually when a patent seems to run out on one, another acid reducer comes on the market. What has worked best for me since 1996 is Prilosec, which is now OTC, so insurance won't cover it, but I take it twice a day, morning and bedtime. A Dr. recently recommended that I switch to pepcid at bedtime but it didn't work for me and I would wake up at night with reflux again. I have lots of erosion on my teeth from so much reflux and vomiting stomach acid. Check with your doctor though because I've read that long term Prilosec can have some side effects. But these past 26 years are the first that I can sometimes sleep through the night and not in a chair. I still need to watch what and when I eat though, nothing really after about 3pm unless it's something soft, ie, ramen or other soup . I often supplement with a liquid protein drink if I don't eat early enough.

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@aunt

I have learned over the years that acidic food is just not worth it for me. for a while I could handle Taster's Choice instant coffee but haven't had that in many years. In place of the coffee, I take a couple of "Jet Alert" every morning they are OTC caffeine pills sold at wallmart. I have been on almost everything since the 80's and usually when a patent seems to run out on one, another acid reducer comes on the market. What has worked best for me since 1996 is Prilosec, which is now OTC, so insurance won't cover it, but I take it twice a day, morning and bedtime. A Dr. recently recommended that I switch to pepcid at bedtime but it didn't work for me and I would wake up at night with reflux again. I have lots of erosion on my teeth from so much reflux and vomiting stomach acid. Check with your doctor though because I've read that long term Prilosec can have some side effects. But these past 26 years are the first that I can sometimes sleep through the night and not in a chair. I still need to watch what and when I eat though, nothing really after about 3pm unless it's something soft, ie, ramen or other soup . I often supplement with a liquid protein drink if I don't eat early enough.

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Taking caffeine pills doesn't really make sense. As far as i know, the problem with coffee is the caffeine, which loosens the sphincter (LES), such that acid can leak into your esophagus. So, I suggest trying to wean off those caffeine pills, and maybe try decaffeinated coffee which has only a small amount of caffeine.

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@aunt

I have learned over the years that acidic food is just not worth it for me. for a while I could handle Taster's Choice instant coffee but haven't had that in many years. In place of the coffee, I take a couple of "Jet Alert" every morning they are OTC caffeine pills sold at wallmart. I have been on almost everything since the 80's and usually when a patent seems to run out on one, another acid reducer comes on the market. What has worked best for me since 1996 is Prilosec, which is now OTC, so insurance won't cover it, but I take it twice a day, morning and bedtime. A Dr. recently recommended that I switch to pepcid at bedtime but it didn't work for me and I would wake up at night with reflux again. I have lots of erosion on my teeth from so much reflux and vomiting stomach acid. Check with your doctor though because I've read that long term Prilosec can have some side effects. But these past 26 years are the first that I can sometimes sleep through the night and not in a chair. I still need to watch what and when I eat though, nothing really after about 3pm unless it's something soft, ie, ramen or other soup . I often supplement with a liquid protein drink if I don't eat early enough.

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Thanks for your detailed reply. When my ENT doctor suggested I go on Prilosec (my symptom was hoarseness), I didn't because of fear of long term effects, most notably, dementia. If I had listened to him, perhaps my condition wouldn't have progressed to full blown Barrett's. Now I'm on 40 mg. pantaprazole daily. By taking Prilosec (omeprazole) 2X daily, you're taking the same 40 mg., which is available by prescription and should be covered by your health insurance. You might want to check into that.
I also ordered a full body wedge for my bed from Amazon. It's a foam wedge that goes under a mattress. One doctor told me it's really important to sleep with a wedge to help prevent reflux when you're sleeping. All the articles I've read say that pillows are not enough. I don't know how helpful it is, but my reflux when I sleep isn't very bad. In fact, I'm not very symptomatic at all, and since being on a low acid diet, my hoarseness has greatly lessened, and my most recent endoscopy, one year later, showed no sign of Barrett's Esophagus. I do try to finish eating 3 hours before bedtime, and my internist recommends intermittent fasting, which another expert called the latest fad!
My Bible for a GERD diet is Dr. Jonathan Aviv's book, "The Low Acid Diet." He's recently come out with a cookbook as well. Still, there's no caffeine, ergo no coffee, in his books!

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@t98

Taking caffeine pills doesn't really make sense. As far as i know, the problem with coffee is the caffeine, which loosens the sphincter (LES), such that acid can leak into your esophagus. So, I suggest trying to wean off those caffeine pills, and maybe try decaffeinated coffee which has only a small amount of caffeine.

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I find that my problem with coffee is the acidic nature of it, I have not experienced problems with the caffeine. I have issues with tomato paste and sauce as well.

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