← Return to Cervical dystonia (Spasmodic Torticollis): Looking for support

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@watercolor8

I got Cervical Dystonia, along with Tardive Dyskinisia and Akathisia earlier this year from one of the prescription drugs given to me. They don’t know which one-I was never on an antipsychotic. I was on Cymbalta for chronic pain, clonazepam, doxycycline, Plaquenil and was given Cipro over a period of time. My neurologist had me stop everything (no taper) and has me up to 30 mg Zolpidem (Ambien- yes, 30 mg!) 10 mg 3x day, 600 mg gabapentin, 120 mg Propranolol, added back 2 mg clonazepam, and now 22.5 mg Mirtazapine (Remeron) to try to taper a little off the Zolpidem. I still have the Dystonia, TD, and Akathisia, and don’t know if any of the meds are making it worse. Not sure where to start with taper-what first, how much. Many of these drugs are supposed to be sedating, but for me the combo and dosage has a paradoxical effect, and for 6 months I have slept and average of 1-2 hours a night. The akathisia is terrifying. The neurologist wants to just increase the meds dosage. I feel trapped in a drug hell.

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Replies to "I got Cervical Dystonia, along with Tardive Dyskinisia and Akathisia earlier this year from one of..."

Seriously, I can’t navigate thru all of my conditions much less sort thru all the meds anymore either, and I’m only taking half of what I used to. All I know is, it’s never just one thing. Make a list for your next appointment and don’t leave the office until you’re done with the list. You got all of my support and love watercolor8.
Are you an artist too?

Oh my God I am so sorry you have been poly drugged sending prayers your way I have akathisia it's horrible I have not taken any drugs to help it I stopped the offending drug that my akathisia did not go away... there is no cure for this