← Return to Cervical dystonia (Spasmodic Torticollis): Looking for support

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@erikas

@billdemon Welcome to Mayo Clinic Connect. You were diagnosed 17 years ago with cervical dystonia, You are suddenly experiencing a large increase in tremors and unbearable pain from the disorder. You are looking to connect with others that have had similar experiences.

You will see that I have moved your question into a discussion where members have previously discussed cervical dystonia. You will notice members like @oakbourne @tdonoho @oldkarl @sadnancy have experience with this topic and may be a good resource for you.

I also encourage you to scroll back through the comments to find previously shared suggestions. There are two other previous discussions on cervical dystonia you may want to scroll through a read. I have link these discussions below.

- Anyone else have cervical dystonia? https://connect.mayoclinic.org/discussion/kaia-hi-kaja-this-is-kevin-kelley-just-read-your-post-on/

- Anyone dealing with Dystonia? https://connect.mayoclinic.org/discussion/anyone-dealing-with-dystonia/

May I ask what your provider has said the likely cause of your increased symptoms are?

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Replies to "@billdemon Welcome to Mayo Clinic Connect. You were diagnosed 17 years ago with cervical dystonia, You..."

Not sure yet I see my neurologist next week and a new doctor in February (which specializes in movement disorders) where I live it very hard to find dystonia doctors especially ones that take my insurance the other problem is most doctors are usually booking months out. Well I figured in the mean time I could see if anyone else has similar issues, that was the thought anyway.