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Transplant Evaluation - What to expect

Transplants | Last Active: Nov 28, 2020 | Replies (306)

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@gingerw

@rosemarya I echo what you say, for @dhelmstetter and others, staying positive and healthy is so critical. Follow all your drs' advice and direction, healthy for me also means emotionally and mentally.

For my husband, he was on dialysis for 5.5 years. He was listed at one transplant center, then decided to double list, paying out of his pocket for the second place, which is where he ultimately was transplanted. His attitude was as you described. Be ready in your heart and body. He didn't let the fact of dialysis and kidney disease alter his lifestyle. He created a converter and deep cycle battery set-up for his nightly peritoneal machine. This came out of a scheduled power outage, rather than doing manual exchange. It also served him to take it "on the road", going camping and offroading. He continued to work full-time. He knew that a match would be found when it was "his time". He did extensive sharing of his story with those who wanted to know, and went each month to an in-person support group [www.rsnhope.org], which is where we met!

Is waiting difficult? Yes, indeed! For some, there are other circumstances, other health issues also going on. Each person is different. To have the technology today that we have, is a blessing. To be able to have access to it, yet another blessing.
Ginger

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Replies to "@rosemarya I echo what you say, for @dhelmstetter and others, staying positive and healthy is so..."

Inspirational to say the least!!!