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← Return to Transplant Evaluation - What to expect
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Transplant Evaluation - What to expect
Transplants | Last Active: Nov 28, 2020 | Replies (306)Comment receiving replies
@cehunt57, I just got home from Mayo for my annual evaluation. I have every confidence that Mayo will be there when you need them, just as they were there for me and countless others when we needed them. I love the care I get from Mayo as a post transplant patient. My local doctors care for me and can contact Mayo when /if necessary. I travel to Mayo yearly for my post transplant evaluation.
It sounds like a good thing that your inactivation is due to you doing well enought for now. Your attitude and your patience are admirable as you must surely be taking good care of yourself. That will be to your advantage after trasplant surgery.
@cehunt57, it is so good to hear from you. I hope that as the word about living donation is spread that a donor will be found.
How did you learn that you were inactivated? Will you have to be reevaluated?
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@rosemarya when I was there (Mayo Rochester) in October 2019 we discussed the UNOS listing and decided then that I would switch from active to inactive. There is a kidney function lab called GFR that indicates the percentage function of your kidneys. When that number is 20 or less you are eligible to be evaluated/considered for transplant. Mine has bounced around from 14 - 42 over the last 4 years. It was 24 last October when the listing was changed to inactive. I was first evaluated in 2016 and have been back yearly for a review evaluation since then. I see my local nephrologist in September. If everything continues to be stable perhaps this year’s Mayo trip won’t be necessary.