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Transplant Evaluation - What to expect

Transplants | Last Active: Nov 28, 2020 | Replies (306)

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@gaylea1

@beckyy39 everyone's journey is different. I got through major anguish thanks to this caring group. I continually sought advice about all my pre transplant symptoms. I had them all! I was given great tips and everyone eased my way through a very rough 2 1/2 years. Please continue posting on your progress as everyone is here to help.

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Replies to "@beckyy39 everyone's journey is different. I got through major anguish thanks to this caring group. I..."

I was in the ER Saturday night with excruciating hip pain due to weight bearing on the leg that has pitting edema from fluid buildup and the doctor at the local ER acted like I was faking just to get pain meds and did a lot of tests but didn't consider any of those findings and told me to take Tylenol and Advil although I told him more than once I couldn't due to liver failure. Prior to my diagnosis in December, I was an auditor and had Blue Cross and after I had to quit working because of 2 admits for HE with complete amnesia....I applied for disability and haven't gotten it yet and I'm having major financial difficulties....I was approved for medicaid but that meant I had to change all my doctors, and wait for referrals. My evaluation was approved by Humana Medicaid prior to the end of my Blue Cross since there was a 1 month overlap. I now won't have my first appointment with a gastro doctor until April 6 after my evaluation. I will be losing my home and car and saved my last check to move with. I'm 30 miles to the nearest medical facility prior to moving and 100 miles to Mayo Clinic Jax. Friends donated to cover my hotel and food for the evaluation trip or I wouldn't be able to go so lots on my plate and much frustration at the moment.