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Transplant Evaluation - What to expect

Transplants | Last Active: Nov 28, 2020 | Replies (306)

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@beckyjohnson

@onecentwalsh That is what I call myself doing though I'm a bit inadequate because I was not able to recall all the tests & people I will be meeting during those 3 days. I'm about 2 hrs. from Jacksonville. Though it isn't that far under normal circumstances & traffic often increases travel time I'm sure it is a trial right after organ surgery.
Keeping non medical receipts for tax purposes is a great tip. So far I have not read anything indicating donors are allowed to stay at transplant houses. It would be nice to tour it either way just to see. As always it is a pleasure - thank you

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Replies to "@onecentwalsh That is what I call myself doing though I'm a bit inadequate because I was..."

@beckyjohnson, I am happy that you are moving along on this mission! I know firsthand how confusion the maze of tests and procedures can be. Makes your mind spin, doesn't it?
I kept a journal that began as a listing of bills for my records. And, as a recipient, I became very ill and wrote short blips on most days. It includes: procedures, how I felt, blessings, prayers, fears along the way. There are parts that I do share publicly, and other parts that are mine alone. It is my personal treasure:-)
Hugs,
Rosemary

@beckyjohnson. I toured the gift of life house in Rochester, I don't know if they are all the same. Donors are welcome to stay there for any visit relating to donation but a tour is required 1st & your caregiver is required to stay.
Because I didn't need a caregiver for my evaluation appointments or my 6 month post surgery check up (in a few weeks) they said I could get a note from Mayo saying I don't require a caregiver & GOL would let me stay there without one.

@beckyjohnson You made me smile...Thank you. For me it is more of the not knowing than confusion that gets to me. Though I haven't found anything I claim as my own - not for public yet I appreciate & love that you shared that. Because you shared that which I did not know it will be ok to cross that bridge should I come to it. Yes the maze does make my head shake if not spin.

@mauraacro I fondly just thought what would I do without you. I did research a little deeper about who may stay & decided I should call which I have not done. After reading what is available on the actual Jacksonville house website the "next question to come to mind" you addressed as well - that is "What if I don't need a caregiver until the actual surgery?" Thank you so much for sharing. That clears one more way in the "maze" as @rosemarya so aptly calls it.