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Transplant Evaluation - What to expect

Transplants | Last Active: Nov 28, 2020 | Replies (306)

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@cehunt57

@bamagirlgina how exciting! I am not familiar with Mayo-Jax but I have some familiarity with Mayo Rochester. I was there for kidney pancreas pre transplant evaluation in 2016. It was an impressive, thorough and fantastic experience that lasted a week. In 2017 I returned for a review that lasted 3 days. Both times I stayed in a hotel and used shuttle service for transportation. I did tour the Gift of Life House in Rochester. I thought it was more for current transplant patients and didn't realize it applies to pretransplant patients as well. In Rochester most hotels have shuttle service to Mayo and Mayo patient discounts. My insurance has a lodging and mileage reimbursement. It is good you have looked into that with your insurance. One of the most helpful things I found was the Mayo Portal. It is a patient online system. I'm not very tech savvy but my husband helped me with this. It was useful to keep track of any changes in the itinerary, lab & test results and appointment provider summaries. Mayo Rochester also has a concierge service and information desks where there is information about everything and staff who are willing to help with anything. Mayo-Jax probably has similar features.

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Replies to "@bamagirlgina how exciting! I am not familiar with Mayo-Jax but I have some familiarity with Mayo..."

@cehunt57 Do you know if these opportunities are for recipients & donors?

@beckyjohnson I’m not sure what you mean by “opportunities”. Since this is in the transplant group the patients involved are both recipients & donors. Services available for one usually have something similar for the other. Mayo is really good about customizing care for the individual on a case by case basis. There is no “one size fits all”.

@cehunt57 I'm glad to know we both understand this is a transplant group as I fully intend to be a paired donor. Perhaps I used the wrong word to inquire if the services mentioned earlier (transplant lodging, shuttle, insurance reimbursement, concierge) are available for both recipient and donor. Though I expect insurance to depend on individual policies I am wondering if the donors & recipients are um afforded the same services or are they for recipients only?