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Transplant Evaluation - What to expect
Transplants | Last Active: Nov 28, 2020 | Replies (306)Comment receiving replies
@bamagirlgina when my husband went for his transplant eval it was 4 full days. I believe he had 23 appointments that week! It was very tiring. They draw blood, do renal testing, CT scans, MRI, EKG's, lung function..you name it, they test it. They have to be sure you are able to handle the surgery and that you don't have anything else going on. They don't want any surprises. We were able to stay at the Gift of Life house in Rochester while he was being tested. It helps save on lodging, plus we are able to cook our own meals and not have to eat out all the time. Another plus of staying there are all the other people that understand exactly what you are going though.
I wish you the best of luck!
JoDee
Replies to "@bamagirlgina when my husband went for his transplant eval it was 4 full days. I believe..."
@jodeej Every time I read something you have posted I am delighted. Your combined sincerity & sensitivity is amazing.
@beckyjohnson thank you. That is very sweet of you to say. 🙂
@rosemarya
I have completed my evaluation at Mayo Jax and have recieved my sentence..lol..
I indeed have Stage 4 cirrhosis with some decompensated factors. The biggest reason to wait for listing is the Meld score that is only 7.
I was expecting this, so no shock value incurred. They will watch me every 6 months or sooner if needed.
I was so impressed with the facilities and the caliber of professionals there. After 23 vials of blood and too many tests to count I am home digesting this new journey I am beginning.
Please, anyone, feel free to ask me any questions you may have about the Evaluation Process at Mayo Jax. It was an overwhelmingly inspiring trip and the start of new adventures.
@jeanne5009, I hope that you are getting caught up on some much needed rest. I, like you, was impressed with the level of compassion, knowledge, and skill that I received (and still do) at Mayo. You are beginnng a new adventure for sure! I wish you all the best as you continue to move forward.
I do have one question for you about your caregivers - Were all of you able you schedule a meeting together with the transplant team? What do you think they learned about your health situation that will help them to understand your future and their roles?
Rosemary
@rosemarya
Yes...Im resting if anyone can ...during the busy summer and approaching holiday. I get to visit Mayo Jax again next Monday for my Nuitrition meeting. Looking forward to that!
I've been thinking about it and I've concluded that walking in the doors of Mayo and just walking the grounds is what I can imagine as heaven with angels there to help you. Everyone is only interested in you. Very peaceful.
Yes we all made it and my daughter and friend felt the same way. Somewhat ov erwhelmed I'd say. Good bonding time for all of us with an educated purpose for being there.
Gotta run to see my PVP to review all of it with him.
Best wishes for a safe 4th!
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@jodeej, Thank you for sharing your personal experience with the evaluation process. I had my evaluation started as an inpatient and continued as an outpatient, so I really enjoy hearing your experience.
Rosemary