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Kidney stones

Kidney & Bladder | Last Active: Jul 8, 2022 | Replies (124)

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@tracilynn0418

Yes I always do labs at least a week ahead depending on which he wants done because there is one that takes longer to receive back I've started doing the 24 hour urine one more than a week in advance because when I cut it too close because it gets FedEx's to a lab he didn't have the results one time for my appointment. Luckily he's pretty good and leaves indepth voicemails to me so I can understand everything he always gives me a copy of all my labs since I started seeing him so I have started a binder so I can always reference back to them to see how everything has changed from visit to visit. As for donors no I have not necessarily really looked but I do have a few people that I know or have worked with that have said they would be willing to but I very well know that could change because it's a big ask of someone to do plus they also have to clear an evaluation also, so I know that. Though my one friend that really got me started on this and the hope of living with so much sadness at once and offered to be a donor and new alot about the whole process. Now I do know that the chances of the being a match is not certain and of course back when I was sick I cannot remember what blood type I am when they checked me because I needed a transfusion. But I have hope, Now not sure what transplant center I would use. I do know of the one closest to me is Omaha,NE other than that and knowing of the mayo I am not knowledgeable of any others. So I know there's still More to learn but hey maybe by the time I figure it out they will have more technology created lol but I do believe that dialysis being not needed would be a hurt for some people , so I do believe in that is why we aren't as advanced as we could be they depend on us needing all these things for the rest of our lives which as a human makes me said because I have so much compassion and don't think any of us deserve to suffer if there's a way to prevent it by all means. Ok end of rant. Hope you all are well!

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Replies to "Yes I always do labs at least a week ahead depending on which he wants done..."

Hi, @tracilynn0418. I am responding because I read that you mentioned transplant centers. I am a liver and kidney transplant recipient and I I have some resources to share with you - if and when you need them.

You can find transplant program-specific reports (PSRs) for every transplant center in the US at The Scientific Registry of Transplant Recipients (SRTR). This is a key resource for transplant patients and loved ones. https://www.srtr.org/
If you have not visited the SRTR site before, it can intimidating or confusing. So here is a post that explains what you will be looking at.
PagesTransplantJuly 2019 Program Summary Report Highlights
https://connect.mayoclinic.org/page/transplant/newsfeed-post/july-2019-program-summary-report-highlights/

I also want to share the Living Donor and Recipient toolkits.
https://connect.mayoclinic.org/page/transplant/tab/resource-36/

I am happy that you have joined us and that you are a part of this active discussion that in involved in proactively sopporting kidney health!