Connect
← Return to May-Thurner syndrome (MTS)
Discussion
Comment receiving replies
Hi @ddbnewmexico, If you would like to get an opinion from Mayo Clinic, please call one of our appointment offices. You can also request an appointment online. The contact information for Minnesota, Arizona and Florida can be found here: http://mayocl.in/1mtmR63
Representatives will ask questions to help direct you to the best specialist, either at Mayo or closer to home.
You may also notice that I moved your discussion and combined it with this existing discussion as I thought it would be beneficial for you to be introduced to other members who’ve talked about MTS.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.
How are you doing, @ddbnewmexico? May I ask if you would share any updates since your first post?
Replies to "Hi @ddbnewmexico, If you would like to get an opinion from Mayo Clinic, please call one..."
Connect
Hi, my name is Maddie Schneider from Columbus, Ohio. I was diagnosis with May Thurner Syndrome in January 2015 after going through a prolonged issue with heart disease. I was diagnosed with Cardiomyopathy in 2005 along with uterine cancer and Thrombosis.
I found a wonderful physician at the Cleveland Clinic, Dr.Daniel Clair who was spot on with this type of disease. Unfortunately, he moved to South Carolina to practice but if you want to find the answers to your health issues concerning this disease this is the medical clinic you should schedule an appointment for a first or second opinion. All I did was call the office of vascular at the clinic and scheduled my appointment, for some patients they will need to get a referral from their primary care. As soon as they receive the referral the office calls immediately to schedule.
I did have the stents placed in the right(1) and left(2) leg in addition to the pelvic area (1). Stayed over one night and returned home the next day. The swelling did reduce over a long period of time. It takes a lot of research to find the right physician who treats this disease and has a lot of experience and knowledge concerning this disease. But it's well worth your time! If you don't have a Cleveland Clinic, Mayo Clinic also has experienced physicians who deal with this disease on a regular base.
You can't beat the Cleveland Clinic. I am scheduled to discuss the next step to put an end to the edema and the shading of my lower extremities. It's very difficult for me to walk, to the point I need a walker and had to set aside the compression stockings because it only makes my issues worst.
I am not able to stand or walk for an extended amount of time, I get cramping in the lower extremities like I have pulled a ligament but what it is the compression of the left iliac vein with the right. My next move is surgery to lift and redirect my blood system to help eliminate these issues to make my heart function properly to extend my quality of life. It's well worth the time to stay on top of this medical condition and find the right doctor. Pick up the phone or get online to the Mayo Clinic, I am glad I did! With Gods Warm Blessing, Good Luck, Maddie