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I am wondering how to go about having Mayo Clinic can give me a second opinion on my possibly having May Thurner Syndrome. Based on my history of blood clots in my left leg, beginning with my first pregnancy at 23, he suggested we should check. The MRI I had did not rule out May Thurner. He explained that next they'll insert a probe up my left leg to do an ultrasound and an xray to see if my right iliac artery is pressing on my left iliac vein. If so, he said the treatment is to have a stent put in the vein. BUT he said they may not have the correct size of stent, and that I may have to come back after the diagnosis to have the stent put in. That makes me think of a mechanic working with an incomplete set of tools, and I don't know what to do next, but I don't want that! Is there an online review? Or do I need to get an appointment?
Replies to "I am wondering how to go about having Mayo Clinic can give me a second opinion..."
I'm sorry for your health issues. My wife and I had a rough start with our first born. She was hospitalized at the end of her pregnancy for a blood clot in her left thigh. After that she had several tests done. About 10years ago doctors at Mayo found that she had Factor V Leiden(a blood clotting disorder) since that she has had to stay on blood thinners and constantly have her blood checked. I hope this may help you.
Hi, my name is Maddie Schneider, I posted an article online a few minutes ago about May Thurner Syndrome. Please read below. Your doctor is wrong when he said you don't have May Thurner Syndrome. May Thurner Syndrome is the compression of your right and left iliac veins. Women have this disease more than men. It can happen after one or two births. Please go to the Mayo Clinic Website and type in May Thurner Syndrome. It will give you a complete explanation of this disease and what steps you need to take. I strongly urge you to contact the Cleveland Clinic. I drive four hours to get my location in Cleveland Ohio. Call the Vascular office, if you need a referral call your Primary Care Physician and have them send one over to their office. Prior to calling your Primary Care Physician asked the Vascular Office their phone number and fax and the person you should direct the referral. Your Primary Care Physician will ask for that information if you don't already know.
If you have a computer get online and ask the Cleveland Clinic who treats May Thurner Syndrome and read, read their accomplishments with this disease. Then select the physician you want to have a consultation concerning this disease. I went to Dr. Daniel Clair but he recently moved to South Carolina. Nevertheless, they can put you to the right physician. In fact, ask the Vascular Office who they would highly recommend if they had this issue. Another clinic is the Mayo Clinic. They are all over the United States You won't go wrong going to the Cleveland Clinic. Great team of physicians. With Gods Warm Blessings, Good Luck, Maddie
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@ddbnewmexico I strongly suggest you get an appointment at Mayo. Go to mayoclinic.org where you will be able to get phone numbers for whichever Clinic is closest to where you live. If you’re not sure which department to get an appointment with, choose general internal medicine. There you will meet with someone that will send you to the right doctors for your specific needs. This will help get you on the right road to recovery.