@rosemarya This is pretty similar to what I was saying, and of course it's impossible to know where you stand on the list until you are definitely at the top and even then you could be displaced by a person in greater need.

My MELD never went down, it just gradually went up. What I have wondered and have not seen answered anywhere, is does the transplant hospital have some discretion in deciding to whom they offer the liver? It seems as if they should. I realize that they can petition for additional points for a patient but if an appropriate liver comes in can they make a decision on whom will get it? I have always been curious about that because I was transplanted at a lower number than typical in Boston but was getting increasingly sicker. The apparently increase the MELD at set intervals and mine was not yet increased, but I suspect it would have been. I did mention that once to someone in the transplant unit but the answer was vague.
JK

@contentandwell, We are certainly not a "One size fits all" kind of group! We have so many varying symptoms and numbers and questions - and - the wonderful doctors and specialists on our transplant team, figure it all out for us!
Rosemary