Happy St. Patrick's Day
I think everyone is Irish on this day. lol
Anyway, due to having pink eye and just starting eye meds, I'm not going back to read all your posts. So, If I say something you already addressed, I'm sorry!

I've had a sluggish thyroid for years and years. With meds, it has kept it normal. All of a sudden, about 3 weeks ago, I went to the neurologist (will tell you about it in a minute) and she ordered blood work. My thyroid number was way, way, way low. My PCP had me take it again (3 weeks later) and the result was the same. He is reducing my dosage. It must explain why I am so tired and why when I look at food I put on 10 pounds. He will redo the blood work in 3 months after I've had time to get the new dosage. I am hoping it will arrive this week from my mail away pharmacy.

That's the story about my thyroid. Now the shaking. Another story...….
This year I've had 2 spinal surgeries (Feb. my cervical spine and Oct.my lumbar spine). As far as I am concerned they were a success because it too away the chronic pain (24/7) that I experienced for over 10 years, probably closer to 15. Just a couple of months before my lumbar surgery, I noticed that when I sat, I couldn't sway my right foot, lift my toes or move my toe at all. I also noticed that although it was not the same as the right, my left foot did not feel normal, either. My neurosurgeon took ALLLLLLL SORTS OF TESTS and could not figure it out. He said if it didn't improve after the lumbar surgery, he wanted me to see a neurologist.

Not only did my symptoms NOT improve, they were worse. I needed to use a cane to walk and I had s few falls. This is something you don't want to do after spine surgery. Off to the neurologist I went...….

During my preliminary exam she noticed my hands quivered. I did notice that starting to happen, too. My mom, son and cousin also have (or had) quivering hands. It did not prevent any of them from writing or doing anything. As a matter of fact, my mother was a typist and my son does nuclear medicine tests that require him to give injections. Neither had a problem. Then, the doctor looked in my mouth. She noticed the roof of my mouth was quivering, too. I never felt that.

She reviewed my MRI (ordered by the neurosurgeon) and noticed that a bunch of nerves are clumping together. I also still have stenosis. However, NONE of these hurt. The doctor who performed the test said I have SIGNIFICANT nerve damage coming from my lumbar spine and S1. That is all he would say. I meet with the neurologist Tuesday, followed by an appointment with the neurosurgeon. It is my hope that they will be able to give me a diagnosis (more than neuropathy in my feet) and come up with some sort of a plan of action to slow down the neuropathy.

The reason I al telling you all this is because I have some of the similar symptoms and I wanted you to know about who I have seen and tests they performed. Will share more after my appointments; that is if they give me more information.

Happy Sunday...…
Ronnie (GRANDMAr)

@jewles63 - Thyroid imbalce certainly does have all kinds of symptoms!!! I told my endocrinologist about the vibrations but all she wanted to do was put me on a 24 hour halter monitor. I really don’t think it’s my heart because when it happens i check my pulse and it’s normal. I also listened to my heart with my stethoscope (I’m an RN) and it’s normal as well. So strange. I feel like no matter how well I explain this to any doctor they will never figure it out. I’m just praying it too shall pass. For me, they mostly happen in the middle of the night after I’ve been sleeping for several hours. Wondering if it’s some kind of positional neuropathic effect from compressing certain muscles/nerves in my neck?!?!?? Idk. I should get halter monitor results this week as well as repeat thyroid labs to see if my meds are working to suppress it. Prayers for everyone on here dealing with difficult symptoms.

My thyroid was enlarged (Goiter) as well for at least 2 years. My endocrinologist did an ultrasound in his office and said that the nodules were actually "the ultrasound looking through parts of my thyroid that had already been eaten away and disappeared"... I said nope and went to The Mayo Clinic in Jacksonville. They said we would wait and see what happened with the nodules as well. I said "Nope, no thank you. Take it out." The pathology came back and I had Stage One Papillary Thyroid cancer. We never would have known if I hadn't insisted they remove it. Removal may not be necessary for all patients. I am just saying keep it in mind if it goes on for a while. Dr. Casler (the department Chair) has done more than 2500 Throidectomies and I wouldn't have trusted anyone else to do the surgery.

i have this vibration all over and its getting worse i am feeling even like dizzy, i have gone to nerurologist and did all tests he didn't find anything, i have Hashimoto's but my labs are mostly ok although my TSH is a vit hight for me, i feel fine in 1.0 and it is aroun 2.20, but this is driving me insane nobody can find out what it is.

Hi, i also have those vibrations/internal shakiness and for many years now been to neurologist, have MRI AND MRA and found nothing my endo knows nothing or any other doctor very frustratiing. If you find out what it is please share it, thanks

I had vibrations for 4 months. I made a post today. My vibrations are so much better almost completely gone 2 weeks now! I only get super mild ones. Barely notice them and only when I get near the fireplace. I had a rain leak in the chimney last year. Long story short. The leak was not correctly fixed by the contractor. I had a mold analysis done. It was chaetomium mold. And at a problem level. I would research heavily mold. Chaetomium has been known tho cause perm nervous system damage. This is serious. There is research out there some site was talking about it being or mold being a cause of short timers disease. Im not a doctor. But consider researching mold. Consider if you’ve had any water leaks anywhere in your home in the past. I wish you peace and that you find the answer and get better. I’m seldom on here since I’m visually impaired. But I’ll try to check in.

Hi, have you figured out what was causing all of it? I have very similar symptoms and have no idea where to go. Have been to cardiologists already, nobody gives me any definitive answer. Could it be just from the thyroid? Thanks!

Was wondering if you ever found anything else out about your internal vibration? I have had a heavy vibration that is intermittent on my left side, mostly on the left side of my chest, my left elbow area and my left thigh and knee for about seven months. They have done CAT scans with and without contrast, MRIs with and without contrast on the brain neck and cervical spine and found nothing. I’ve had so much blood work done I don’t even know where to begin and everything is normal. I do have nodules on my thyroid That are benign and we monitor those yearly, that’s the only thing I can relate to anyone else that seems to be suffering from this condition. The neurologist said he doesn’t know where else to look. I’ve been to a cardiologist and everything there comes out normal as well

Hi jewles63, I just read your message and I relate to you and your symptoms. I had my thyroid Iodine treatment in 1984 and now I do not have a thyroid gland at all. I also take levothyroxine prescribed to me by an Endocrinologist. She has upped my dose recently as my thyroid is too low and my parathyroid is far too high. I do have a cyst on my parathyroid gland. She also took me off taking Calcium tablets every day. I too, also get the shakes through my whole body and no Dr. has ever told me what this could possibly be. I almost fall all the time, so I stay home a lot. I am not sure if I have ever told the specialist. Perhaps she would help with this problem. I am going to call her. I also want to tell you that for about five years I suffered so much pain in my chest that I couldn't breathe properly. I saw many specialists including having many heart tests done, Holter monitor, treadmill test done while laying on a bed with dye. I forget now what this is called. It takes hours to do it and I have had it done twice. I have been told that my heart is fine and that perhaps I have Costochondritis. After so many years of suffering, I cried to my Dr. and told her that I couldn't stand the pain any longer and she gave me a script for Amitriptyline, and guess what? My pain has totally gone away. I take two pills at bedtime and no more pain. It is truly a blessing for me. I am not sure if you have the same type of pain as I do, but it was always in my chest where my breastbone is. I stopped going anywhere because of this pain. Now I have Bursitis in my shoulders and am in so much pain every day. Getting older sucks big time.

I (39yr olf Female) have this same thing! I'm comforted to hear you describe it so clearly! Thank you for that! You give me relief that I'm not crazy!
I have been diagnosed with Hypothyroidism (probably Hoshimotos) by a naturalpath MD. where I learned most people on thyroid meds still have symptoms despite hormone levels returning to normal because the inflimation in the cells is still present. Something to discuss with a REALLY GOOD Dr. NOT A DISMISSIVE ONE! I like many of you have been trying to find answers and just want to feel normal again! The most success I've had is going on a completely antiinflamatory diet. It subsides, but I still have this and other symptoms. It takes a long time to purge you body of toxins from bad food/environment toxins etc. Best of luck to all.