← Return to Thyroid? Or something else? Constant internal shakiness

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@blulilbaby

I used to have the horrid night sweats and heart palpitations too. I take a heart regulating med called Metoprolol. I had the tilt table test at Mayo and they said I had POTS (Postural Orthostatic Tachychardia Syndrome) meaning when I adjust posturally my heart rate changes. I had the dizziness to the point where I would actually have to catch myself to keep from falling as well. Ever since I have been on the med I haven't had any issues at all. My night sweats stopped when I got on a good dose of Thyroid medication. It is a good sign for me to pay attention to because if it starts again I know my meds are off and to go see my Endocrinologist to check my levels. A random doctor that wasn't even mine stopped to look at my chart one day and asked if I had been tested for Graves. That sent me to an Endocrinologist (The only specialty I had not seen) and he ran the specific blood tests for Graves, Addisons, and Hashimoto's. I swear when I went back for the results and he said I 100% had Hashimoto's I stood up right there and did the dance of joy that I had a disease! Because it turns out I wasn't imagining things or faking symptoms. It finally had a name and if it had a name I could do something about it before it killed me. A regular thyroid level will not show you whether you have it or not. You have to test specifically for those three things. SO see an Endocrinologist and when you make the appt ask if they specialize in Graves or Hashimoto's. It makes a difference. If you have it you will start on meds that will take a little adjusting to get a good level to control everything that is happening but I swear there is an end game!.I can go outside in the daytime without dying in minutes from heat intolerance. I can work a part time job now instead of being home bound. I sleep an entire night through without waking up. I haven't fallen or had a significant dizzy spell in almost 2 years. My heart palpitations have stopped completely.Removing the thyroid is NOT for everyone. If you have HD it can be managed with medication. Mine had just been undiagnosed and active for 7 1/2 years so there was just too much damage to almost everything inside my body for me to be able to manage it with just meds. I wish you luck! I don't hope that you have HD but I hope that you have HD, (You understand that. ) Most people do not know this but your Thyroid LITERALLY tells every cell in your body what to do so when it is broken everything goes haywire in your body. If it gets to the point of removal I can point you to the best doctor at Mayo in Jacksonville, Florida, to do it. He has done more than 2500 Thyroidectomy's and is the chair of the department. I went to the top guy and I am so glad that I did. It could not have turned out to have a better result for me. First step you have to go see an Endocrinologist to have the blood test. The results can literally change your life.

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Replies to "I used to have the horrid night sweats and heart palpitations too. I take a heart..."

Hi, I have had some of these same symptoms for over a year and about 4 doctors later I’m still not any closer to finding out why this is happening. It started out with chest pain lasting about 15 minutes that sent me to a doctor, after running some blood tests and a normal ecg he diagnosed me with Hasimotos and sent me for an ultrasound of my thyroid. I started levthyroxin and multiple nodules were found and my thyroid was enlarged, but we will keep an eye on it. (He said)! Still getting chest pain I was sent to a cardiologist where after lots of tests was found to be normal (lol) ! Now I have a vibration throughout my body that is driving me nuts.. Sent to a neurologist that found neuropathy in my legs and feet and started another medication for that. Still get the chest pain about once or twice a month and vibrate like a cell phone . I’m at a loss...and another ultrasound scheduled this week!

I suffer from Graves disease and am looking to possible thyroid removal. Would you please share the name of the doctor at the Mayo clinic in Jacksonville that has performed more than 2500 Thyroidectomy's? Thank you so much!

Yes it is so crazy amazing at how much the thyroid, petuitary, and hypothalmus all work together to orchestrate almost every function in the body, and if it is off in any sort of way...your whole body is off, i was same way, everything got undiagnosed or mis diagnosed for so long....i was given meds for anxiety and depression and i had never struggled with that my whole life!! I was treated like it was all in my head....i know exactly what you mean....super odd to rejoice at having a positive diagnosis for something....but it is finally such a relief when they find out what is really going on, and that you are not insane, and you can finally get the care you need! I think a lot of people go through this...and especially as we age...and that ol thyroid gets disfunctional....like even changes our metabolism...you can try every diet to lose weight...and people do not realize it could be a thyroid issue...for me it was a cancer issue...medullary thyroid carcinoma....one whole year misdiagnosed....but caused my thyroid to be out of whack...and was relieved to finally get a diagnosis for anything!! Because i knew what was going on in my body was not normal....now i have active NET's....which are tumors or cancer nodules that produce all sorts of hormones like a thyroid....things can get pretty out of whack...i have no thyroid as it has been removed, but do well with my thyroid meds....and the neuro-endocrine cancer is an ongoing battle of which i have just gotten all scheduled into Mayo for new assessment....but i am super glad you were able to get your issue figured out, and could get the treatment you needed...i think every adult should have their thyroid function checked....and with our American diet....and all the hmo's i know some adolescents struggle with thyroid issues too like my grandson who also has hashimoto's. I wish you the best in your treatment!!

Question: if as you say the thyroid literally tells every cell in your body what to do, how can it be okay to remove your thyroid? Are drugs alone able to compensate?