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Long-term Antibiotics for Bronchiectasis & MAC

MAC & Bronchiectasis | Last Active: Aug 14, 2020 | Replies (164)
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@testlady

In addition to my lung cancer, I have now been diagnosed with MAC. Three different antibiotics, three times a for for at least a year. I am freaked out about over use of antibiotics...becoming resistant to antibiotics. Are my concerns justified?

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Replies to "In addition to my lung cancer, I have now been diagnosed with MAC. Three different antibiotics,..."
John, Volunteer Mentor | @johnbishop | Aug 2, 2020

Hello @testlady, You'll find an amazing group of supportive and well informed people here. I recommend reading through some of the past discussions and joining in with your questions. Here are a few to start with:

> (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS https://connect.mayoclinic.org/discussion/mycobacterium-avium-complex-pulmonary-disease-macmai/ (main thread over 6000 messages, incredible information)
> Long-term Antibiotics for Bronchiectasis & MAC https://connect.mayoclinic.org/discussion/bronchiectasis-mac-antibiotics/
> MAC antibiotics and side effects https://connect.mayoclinic.org/discussion/mac-antibiotics-and-side-effects/

@testlady, which antibiotics were prescribed? Were you able to share your concerns with your doctor?

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Colleen Young, Connect Director | @colleenyoung | Aug 2, 2020

Hi @testlady, as suggested by John, I moved your message to this existing discussion about MAC and antibiotics in the group dedicated to MAC & Bronchiectasis here: https://connect.mayoclinic.org/group/mac-bronchiectasis/

Many members shared your anxiety about taking antibiotics. I encourage you to click VIEW & REPLY to read about the experiences of others, like @windwalker @flib @auntnanny @ginak @alleycatkate @macjane and others.

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Terri Martin, Volunteer Mentor | @windwalker | Aug 7, 2020

@testlady, Hello there. I am so sorry to hear about your compounded issues with your lungs. I too was freaked out about taking the Big 3 as we call the 3 antibiotics. I was diagnosed in 2005 with mac and refused the Big 3 out of fear of developing liver problems. I took a short stint of treatment with azithromycin and that knocked it down to a level of not being quite so sick. I was back to my normal which was living with lots of mucous and coughing. I thought it was just my asthma that I had had for most of my adult life. My lung tissue steadily got more and more damaged over the years and my lung function is very low. I finally got good care in 2013 from My Mayo Clinic care team. I never did go on the Big 3, but was put on other meds with no side effects. I do not know if I had gone on the Big 3 back in 2005 if it would have made a difference in my lung deterioration or not. Are you confident in your present physician?

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