Macjane....what you have shared makes me so furious.....my heart goes out to you....I hope you are getting the care you need and are entitled to. Tdrell

Mac jane I was told by NJH that I needed to get bed whose head elevates to 30 degrees and also sl at knees. I they tell me that I have had MAC and various other weird bacterium in sputum/lungs as a result of my Gerd.....that the bacterium gets into lung then sputum when I silently aspirate stomach contents which contain the weird bacterium into lungs. Not supposed to sleep on right side or stomach. Have to follow their Gerd diet....page long.
I tried looking for beds a year ago and got really confused......all the options! Would love to hear what others say.tdrell

I had the same reflux advice. I changed my diet,and got rid of the reflux. I sleep on two stacked pillows. I knew I'd get no rest half sitting up. It worked for me.

I bought a 7” wedge at Bed, Bath & Beyond. I use that and my regular pillow. I’ve read others just put blocks under the legs at the head of their bed to raise it up. I would prefer to do that put I have a 4 poster bed and it wouldn’t work.

@macjane I sleep with 3 pillows and on oxygen at night only.

@macjane I ride my bike often. It was difficult at first, back in 2014. I am conditioned to it now and in better shape. I don't have to stop to catch my breath when riding any longer. My hubby and I walk every evening around a big block (30 mins). I avoid swimming pools because I do not want to chance catching mac again. Exercise is the best thing we can do for ourselves.

@macjane, it is funny you should say that about diagnosing Sarcoidosis. In my cousin's case, I suggested she may have sarcoids 8 months prior to three doctors she had seen who couldn't figure it out. She finally went to a specialist at UCLA and had it diagnosed. I guessed that is what it was because I had been on auto--immune sites for years trying to figure out my own illness. Many of her symptoms matched with what I had read.