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Multiple abnormal hormone levels - Could it be autoimmune related?
Autoimmune Diseases | Last Active: Mar 24, 2018 | Replies (28)Comment receiving replies
Hello @wdd18054
My carcinoids were found with an upper endoscopy (is that what you meant by an upper GI?). I have also had an EUS,endoscopic ultrasound, which can give a close-up of the pancreas as well as the upper digestive tract. In addition to the history of carcinoids, I have pancreatic cysts which are checked out periodically for growth and change. Have you had an upper endoscopy or an EUS?
In terms of lab work, annually I have a serotonin blood test which is always normal as well as a 24-urine test called a 5-HIAA, which has also been normal. There is also a blood test called chromogranin A (CgA), mine is always elevated, but this test can be elevated for other reasons (heart/kidney problems, etc.)
I look forward to hearing from you again. Solving medical mysteries is quite a challenge isn't it?
Teresa
Replies to "Hello @wdd18054 My carcinoids were found with an upper endoscopy (is that what you meant by..."
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Yes, I have had 3 different upper GI's, as well as a colonoscopy. They were all fine, other than the colonoscopy showed I had a longer than normal colon which caused the colon to have more twists and turns.
I have had several years ago the 5-HIAA, which did show some mild elevation but repeated tests came back normal. My chromogranin A was tested several years ago and it was normal as well.