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Multiple abnormal hormone levels - Could it be autoimmune related?

Autoimmune Diseases | Last Active: Mar 24, 2018 | Replies (28)
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@lisalucier

Hi, @wdd18054 -- thanks for providing all this information and background. Sounds like it's been a long road with these endocrine glands and resulting hormonal levels.

I'd like to introduce you to a few members who have mentioned some of the topics and conditions you are talking about, like @vdouglas, @retiredteacher, @gailb (diabetes); and @hopeful33250 (neuroendocrine tumor); and @predictable, @myqbrook and @ujeeniack (parathyroid gland).

@kdubois and @gman007 may also have some insights for you.

What kinds of symptoms are you experiencing from all of this, @wwd18054?

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Replies to "Hi, @wdd18054 -- thanks for providing all this information and background. Sounds like it's been a..."
wdd18054 | @wdd18054 | Feb 24, 2018

The symptoms vary and seem to come and go. A few that that have managed to come and go for years, are fatigue, I go thru periods where I wake up around the 3 or 4 am timeframe and can not go back to sleep for about an hour or two. (presumably this is when my cortisol is running high), Headaches, loss of peripheral vision in my right eye, dizziness, severe orthostatic hypotension, fluctuation in weight, Hypoglycemic episodes (requiring me to carry glucagon). There are many, many others but as I can researched that all seem to vary depending on what hormone may be high or low at any given time.

Thanks for tagging people you think may have some input.

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Teresa, Volunteer Mentor | @hopeful33250 | Feb 25, 2018

Hello again @wdd1805

I'm wondering if you have had any problems with flushing, diarrhea (which are symptomatic of carcinoid syndrome)? How have your doctors approached hypoglycemic episodes? Any close up look at the pancreas, such as an EUS?

Teresa

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wdd18054 | @wdd18054 | Feb 26, 2018

I few years back I did have trouble with flushing, but never problems with diarrhea. However I still have trouble with the rapid heart beat from time to time still. The Upper GI's have all been fine, I have had 3 over the last several years. I have not had a EUS's, but due to having gastric bypass it is not possible to do EUS the normal way, or at least that is my understanding.

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