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Adrenaline spikes: Med detective needed, award given
Diabetes & Endocrine System | Last Active: Aug 7 8:28pm | Replies (211)Comment receiving replies
Aloha,
I have been dealing with the exact same thing for a full year now. Been in to see a heart doctor, full blood work, including thyroid functions, prolactin and DUTCH dried urine tests for hormones. Every doctor shrugs their shoulders or pushes anxiety meds (this is not anxiety) it’s very frustrating. Has anyone been able to get any further information on this? I’m going to look into pheochromocytoma. I have been doing endless research on how our hormones function, and how the HPA Axis, pituitary gland, thyroid and adrenal glands all work together. I refuse to stop advocating for myself until we have answers. This forum is old I’m aware but if anyone found answers, please reach out. I feel for anyone who is going through this as well, it’s put a stop on my life and I just want it back.
Replies to "Aloha, I have been dealing with the exact same thing for a full year now. Been..."
@b808 Welcome to Mayo Clinic Connect. You feel your providers are wrongly diagnosing you with anxiety but you refuse to stop advocating for yourself. .
You said, "I have been dealing with the exact same thing for a full year now," and I understand it's related to your adrenal glands. Would you tell me a bit more about your symptoms or anything else that is relevant?
Members like @catcr505 @becsbuddy @gingerw @dorisena @ess77 @beanie300 @robjohn @robjohn have recently discussed topics in the Diabetes/Endocrine System groups and may be of help and/or support for you.
Below I have linked previous discussions I think may be of interest to you. I suggest scrolling through the previous posts to see posted discussions.
- Possible Adrenal Issues https://connect.mayoclinic.org/discussion/possible-adrenal-issues/
- Pheochromocytoma & Paraganglioma https://connect.mayoclinic.org/discussion/pheochromocytoma-paraganglioma/
- Possible NET with No Evidence of Tumor: Mediastinal Mass https://connect.mayoclinic.org/discussion/possible-net-with-no-evidence-of-tumor/
- Hope with Hashimoto's https://connect.mayoclinic.org/discussion/hashimotos/
May I ask if you have seen an endocrinologist? If you have are you able to travel for more specialized care?
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Hello b808!
I have been able to find a balance between my thyroid medications (Synthroid and Cytomel) and HRT (estrogen and progesterone...both synthetic and bioidentical) that seems to work to keep my “nighttime adrenal rushes” under control. I completely agree with you that it is a hormonal issue. I can even affect mine nighttime “rushes” by the foods I choose to eat in the evening (pasta actually helps me sleep through the night). I hope you are able to do more research, and update us again, if you discover anything interesting. Best of luck to you 🙂